Perhaps you need to switch LLMDs for a fresh evaluation if, as you said in another post, you are getting worse?
Posted by Mountainsky (Member # 51857) on :
I'm trying one more time with this llmd then moving on. I'm too angry and don't know what to do going forward. I feel like I'm utterly going crazy. My f/u with her is tomorrow.
The only problem with seeing another llmd is $. The one down the street from my job is alot more $ Hey holidays will be here before you know it maybe that can be my gift from my family since this is the only thing I want...I want my LIFE BACK.
Posted by Lymetoo (Member # 743) on :
quote:Originally posted by Mountainsky: ...I want my LIFE BACK.
Make your determination to NOT GIVE UP.
Posted by terv (Member # 29410) on :
On the Trying Low Oxalate FB group there are a number of people who have had a lot of issues after taking an abx. Since that case doesnt apply to me I don't know what their symptoms are or the theory as to why it happened.
There is that "floxed" thing people get from abx like cipro.
Maybe you are someone who cant tolerate abx?
Posted by Garz (Member # 52095) on :
all of the links above are helpful in understanding the mechanisms involved with these diseases that drive the type of symptoms you are experiencing.
but i get the sense that this is not the explanations you are looking for?
the basic facts are lyme, bart etc directly cause anxiety, rage, obsessive fear, OCD, depression and a host of other CNS function related issues.
some people are also very reactive to treatments - and many things that are supposed to help often result in dramatic flares of symptoms.
this is unfortunate - but appears to be a fact of these illnesses. especially bart i seem to see it in often.
some find going very slow and low with treatments allows them to gradually make progress
others find neuropathy and immune reactivity calming measures are needed prior to any antimicrobial treatment
its highy individual
i would also say that there are more than one component to successful approaches the pharma or herbal interventions are just one component there are the psychological interventions often also needed to win through this challenge there will be times when this element is more important than any pill or potion.
how we think about our life, our illness, our treatment, our future has a huge impact on our experience, also our physical health - as well as whether we succumb to anger or hopelessness or are driven to focus on what positive actions we can do and persevere
esp if treatment is proving difficult - you may benefit on focussing on this aspect of the fight as sincerely your posts do read like it would help you a lot.
Posted by Bartenderbonnie (Member # 49177) on :
This will explain it for you. It is my FAVORITE post. You have a Tick Illness, you are not crazy, you are not alone and you can get well!
Wow, Bartenderbonnie,I never saw that one before. That's great!! Except I could add plenty to it, as if anymore were needed!
In my last consult with my LLMD, he said, "You know, you scare doctors!" Gulp. Well, I do know that. I just forget to go light on the gory details sometimes.
In his favor though, he was not refusing to work with me or dissing me, really. So many doctors and dentists have refused to work with me. It's exhausting. But he has stuck with me through thick and thin, or both at the same time).
Moutainsky, those of us with late-stage TBDs have an extremely tough row to hoe. It takes extraordinary strength and persistence to keep picking yourself up off the floor and to keep plugging away as best we can.
Others have done it and gotten better, so so can you and I. You have a very great cheering section on LN. Don't give up on yourself. I know, easier said than done.
Posted by milton (Member # 52455) on :
I remember getting ready to walk into a grocery store and saying to myself "just do your best to pretend your not crazy"
What happens with Bartonella infection is that it calcifies the whole body including the brain. those calcified plaques are full of toxin releasing bacteria.
“An infectious origin of extraskeletal calcification”
"The nanobacteria were discovered in white films sticking to the surfaces of tissue culture vessels containing mammalian cells and media supplemented with bovine serum (3). A member of the Proteobacteria family, which includes Bartonella and Brucella species, the nanobacteria have distinctive properties, including heat resistance and the ability to pass through 0.1-mm sterilization filters (Table 2). Their most remarkable characteristic is the formation of carbonate apatite crystals at neutral pH and at physiologic phosphate and calcium concentrations."
So you need to start slow with this and build up as you get used to it. These sulfa compounds are naturally occuring in the body but if you are deficient you'll have issues. They also do a lot to support liver health.
"Atherosclerosis and vascular calcification in uraemia - a new experimental model."
"The relative proportion of the calcified area to the total surface area of both atherosclerotic lesions and lesion-free vascular tissue was increased in the aortic root of uraemic apoE-/- mice when compared with controls. The accelerated atherosclerosis was associated with an increase in aortic nitrotyrosine expression, indicating enhanced oxidative stress, and an increase in plaque collagen content, indicating changes in plaque composition. N-acetylcysteine (NAC) treatment slowed the rapid progression of atherosclerotic lesions and reversed the increase in plaque collagen content compared with placebo treatment."