This is topic A high THGF beta 1 mean MOLD exposure? in forum Medical Questions at LymeNet Flash.

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Posted by Mountainsky (Member # 51857) on :
Normal should be around 2,800. Mine was over 23,000.

Someone in another forum is telling me this is mold exposure!

I'm really freaking out and getting scared because I know where this might going even though was told we were in the "clear"
Posted by hiker53 (Member # 6046) on :
It could be cytokine inflammation from Lyme or it might be mold.

Can you have a mold expert come to your home to evaluate it.

In my area you can find companies that have dogs who sniff out mold.

I imagine the “mold” dogs are expensive, but it might be worth looking into?

Or would the mold exposure be at your work place.

Good luck!
Posted by Mountainsky (Member # 51857) on :
The house was tested a few years ago, everything was negative. I never knew until after all was said and done.

At my work we were told no mold. Air filters recently changed, double checked. Carpets shampooed twice last week. I don't believe my department has formally been tested though....thats what is gonna be the most devastating, if it's at my job.
Posted by hiker53 (Member # 6046) on :
At my job they always said we had no mold, either, Until a fellow teacher opened her desk drawer and showed them the mold growing inside.

That 6 years ago and they didn’t get around to replacing any of the HVAC/ducts etc until this summer.

You may have to be persistent at work to find out.
Posted by Mountainsky (Member # 51857) on :
Our ducts and vents are clean. My supervisor on his day off even came in and climbed up to look.
Posted by Bartenderbonnie (Member # 49177) on :
Well now you’re making progress towards wellness, so happy for you.

All these tests, mmp9, histamine and THGF 1 beta tells me your LLMD in very knowledgeable, she’s casting a wide net, this is good.


All these are clues.

And you haven’t even got your IGeneX resukts.

Here is a great article about mmp9;

Here is Dr H. on what he tests and looks for;

From what you have posted result wise, you have high inflammation going on. Also high allergy, sensitivities or mold. Causes vary but stealth infections would be high of my list.

Your future might hold more blood testing for mold species.
But can’t wait to hear about results from TIck Born panel.

Stay in the battle, never give up 💚
We are rooting for you.
Posted by Mountainsky (Member # 51857) on :
Yea but Bonnie I don't want mold exposure. If that's what is happening ok I have an explanation, but would have to make a heartbreaking and devastating sacrifice possibly ( work)
Posted by Bartenderbonnie (Member # 49177) on :
Nothing matters but your health.
You know this now.

Don’t let ANYTHING or ANYBODY stop you towards your goal. You have suffered enough. You deserve good health.

Also, it could be a TBI causing your immune system to become hyper sensitive. This is reversible with treatment.
Posted by Mountainsky (Member # 51857) on :
Right I do. But that job is the only thing that keeps me going. No I'm not being dramatic I'm serious
I have so much opportunity there, awesome coworkers that are like family, and a big bonus coming next month.
Posted by Bartenderbonnie (Member # 49177) on :
One day at a time.
Posted by Mountainsky (Member # 51857) on :
Yes, alot of ppl tell me that 💚

I just wish some could understand changing jobs/relocating/seeking a new career just isn't feasible.

I'm very blessed to say I can still work. My boss and coworkers have been very supportive and accommodating. This job didn't happen by accident.

I push myself everyday. I don't know what kind of more hell I'd be facing if I wasn't working, (or had job I hated) This job is like therapy.

There are times I am so tired that waking up I'm extremely tempted to bang out or text my boss and say I'll be in later on in the day. But I don't. I can't. I know what what the alternative is and I refuse to do it.
Posted by Mountainsky (Member # 51857) on :
Igenex test negative on Relapsing Fever and negative on Bartonella, one of the other Bartonella tests was intermediate .

Phone call f/u with LLMD next Monday.

Def have MCAS. EBV still there and she's trying to figure out why my TGF beta 1 is so high. She said it's not necessarily from mold. I'll do a mold test anyway. I have the kit.

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