This is topic Best sleep remedies (for both falling and staying asleep) in forum Medical Questions at LymeNet Flash.

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Posted by paleogal (Member # 45991) on :
Ok I’ve been on seroquel for 6 years and I’m starting to taper off finally (off most pharmaceuticals of all kinds now!)

Noticing lots of neuropathy tingling as I’m trying to fall asleep and that “buzzing” is keeping me awake.

I also wake up after a few hours and have trouble falling back asleep.

I will take any advice for this! Herbs, supplements, meditation exercises, anything that will help.

I was diagnosed with small fiber neuropathy but don’t have a cause that’s covered by insurance (Lyme), so I can’t get that treated unfortunately.

Thanks in advance for any advice!
Posted by Lymetoo (Member # 743) on :
Ambien for me. Have you had a sleep study?
Posted by paleogal (Member # 45991) on :
I have never had a sleep study. Can I just request one from my regular doctor? I no longer see my LLMD due to them being out of state (I moved).
Posted by terv (Member # 29410) on :
Did those symptoms start with your seroquel taper?

Maybe you tapered to quickly on that and/or other stuff?

I am finally off seroquel and ativan. It took forever. I am working on Klonipin. All I took only for sleep.

After that lamictal and lyrica. Based on what happens when I miss a dose of lamictal that one is going to be hard. Lyrica and lamictal I take throughout the day.

I am so done with all these rx's.
Posted by terv (Member # 29410) on :

What i have never understood about sleep studies is how they get accurate brain readings when you are in a different environment and/or with things hooked up to you. I may mis-understand how a sleep study is done.

My LLMD tried to use a Fitbit to get a basic sleep "thing". I know not the most accurate. Anyway I couldn't even sleep with that on my wrist.
Posted by Lymetoo (Member # 743) on :
Your PCP should be able to order an overnight oximeter. It will usually show if your oxygen drops during the night.

I have had a CPAP a little over a year now. I LOVE the results and I therefore do NOT mind the mask. Mine is the kind that just fits into the nose.

I FEEL wonderful most of the time!

AS for the study, they DO allow you to take a sleeping pill that night. I did have trouble sleeping, but they got good readings on the 4-5 hours I slept.
Posted by hopingandpraying (Member # 9256) on :
I have been looking into this because my adult son has long-term sleeping issues.

He recently did an in-home sleep study (son's LLMD prescribed it and a disposable kit was sent to our house) since his irregular sleep patterns precluded him from going to a sleep center and staying overnight for testing. He had to refrain from taking any meds or supplements which would affect the test results a day before, I think.

It was conducted by a Nurse Practitioner specializing in sleep study who is part of the clinic network our LLMD is in. I don't know if you can just ask your regular doctor to prescribe it, however. You would have to ask him/her.

I have also looked into a homeopathic product called Calms Forte which can be taken alongside medication and will not affect it from what I've read. It got very good reviews (fyi - my son has not tried it yet).
Posted by hiker53 (Member # 6046) on :
This may be simplistic but I have an air purifier and it actually makes a soothing noise. I sleep better with it on.
Posted by Lymetoo (Member # 743) on :
hoping .. our PCP orders those for home use. It gives an indication if more testing is needed.

AT the sleep lab I was allowed to take Ambien. They just want you to SLEEP so they can see HOW you sleep.
Posted by terv (Member # 29410) on :
I have had sleep problems for 30 years. I cant stay asleep. The past 2 years I have averaged 4 hours a night.

LLMD has tried to solve this with various meds although for some reason he refuses to use stuff like ambien.

Anyway this may be total coincidence but I started taking my zyrtec and pepcid at the time I turn off my light. I cant remember why I changed - it had nothing to do with sleep. I get a solid 5 hours now. I may be able to get more but my new puppy wakes me up. Sigh...

My riding instructor also uses zyrtec for sleep.

My room is a cave. As dark as I can get it and the only sound is a fan.
Posted by Lymetoo (Member # 743) on :
Zyrtec does help. I take it twice a day, but if I take more at night I get restless legs.
Posted by MannaMe (Member # 33330) on :
Have you tried 5htp? I've found that helps to stay asleep. I don't have trouble falling asleep.

A side note: my Hubby found taking CBD oil helped to cut the withdrawal symptoms a lot when coming off Ativan. Don't know if it would help with others or not.
Posted by dbpei (Member # 33574) on :
I take edible form of marijuana (Indica, which induces calmness and restfulness) at bedtime and it usually will help me to get a good 5-6 hour stretch of sleep in before I awaken in the wee hours.

When I take this, I usually feel rested the next morning. I would love to be able to sleep through the night on my own, but when I skip a dose, I seem to be up several times throughout the night.

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