New here and trying to find help/answers and a LLMD for my husband who I suspect has Lyme disease 2+ years. If I can save him from any more years of pain, it will all be worth it. Thank you in advance for any advice and recommendations.
Erika
Posted by bettyg (Member # 6147) on :
welcome; please see my post here on 46 pages newbie links/advise
Please go to SUPPORT GROUPS, left-hand side column by state. Click on the nearest group leader for advise. Read if they want emails or phone calls per THEIR request Do NOT email; many are too sick to reply; thanks!
now please tell us about husband:
how long has he been sick?
did he have an imbedded tick? a bulls-eye rash?
symptoms?
has je had testing done: western blot igm and igg blood test by:
igenex in calif; md labs in nj; or stoneybrook in ny ... they are the best USA has!
please show all this in your REPLY, and we will help you.
others will help you more; this is my FINAL post due to hip surgery at noon today; back in 7-10 days so you won't be hearing from me further on this.
good luck to you! Posted by DW213 (Member # 9590) on :
Good morning.
To my knowledge there are no true LLMD's in RI. There is a Lyme-friendly doc in North Kingstown called Dr. G. I have not seen him.
A lot of RIer's take the trip to Wilton, CT to see Dr. P. That's what I do. He is top-notch.
PM me with questions if needed.
Posted by cemgjo6 (Member # 11451) on :
Thanks for the info so far...
Husband has been sick for just over 2 years.
Symptoms:
1. sour/bitter taste on tongue
2. feeling like something is caught on the back of his tongue/throat (ie/ like a popcorn kernal)
3. abdominal pain like irritable bowel
4. shoulder pain with shooting "zingers" and numbness down his arm into his hand
5. neck pain beginning from base of neck up back of head
6. facial twinges...feeling like vibrations, tingling and electric shocks in teeth
7. TMJ pain
8. ringing in ears
9. Depression with thinking he's being a hypochondriac.
10. joint pain and popping
He just got a referral for blood work from dr. He's military so I'm trying to gather as much info as I can to be prepared for what tests he should have done and if we should out-source them to non military doctors.
Thanks!
Posted by mbroderick (Member # 5220) on :
You don't have private messaging enabled. Go back to your profile and edit it so that people can contact you 'off the board'. Then send ME a private message (click on the envelope with 2 people). I'll respond with a list of doctors for you.
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