I am feeling a little frustrated with my doctor and I am not sure if I am justified...
She is not a LLMD, BUT she is knowledgeable about Lyme and co's and attend ILADS meeting, follows Burrascano's protocol, etc...
She has treated and is currently treating other Lyme/co-infected patients.
Most or all of her other patients had been diagnosed early, unlike me.
At my last appointment, when I brought up IV b/c of my cognitive and neuro issues and b/c my lyme and co's went undiagnosed for so long, she told me she wanted to keep trying the orals first.
And a few sentences later she said that in a couple of months I might want to see a LLMD, instead of her. ?
Maybe it is in my head, but I sometimes think she does not take me seriously when I talk about my symptoms...
I was branded as a hypochondriac by the doctors at this same practice for years, so a part of me is still afraid to speak up for myself, when I really want to cry out and demand the most aggressive treatments. I have two young kids who need me better fast.
She has talked about other patients she has put on IV and even in the hospital before.
I am just wondering why she might be treating me less aggressively than some of her other patients.
(I have just begun my 5th month of Babs treatment.)
Thanks Jackie
Posted by bettyg (Member # 6147) on :
wondering, please send me a PRIVATE MESSAGE; who are you seeing...full last name in PM please?
you are fortunate to have MANY LLMDS IN MARYLAND!
what are the LARGEST cities close to you; 4-6 ... with the CLOSEST ONES being named first; i'd be happy to help give you names...
ps ... you've had 5 months of babs treatment; have you had any other treatment prior to this?
i've NOT had babs ... no knowledge on it, bart, or other co-infections!
Posted by TF (Member # 14183) on :
Since she mostly has experience with those diagnosed early, she is probably not the best doc for you. Chronic lyme is best treated by a LLMD because it is far more complex that lyme caught early--actually can be considered a whole different disease because it is now disseminated throughout the body with brain involvement. (Read this in the Dr. Joseph Burrascano Lyme Treatment Guidelines.) This is not true when caught early.
She may feel over her head in your case, so she is suggesting a LLMD. I fully agree. In other words, she does not have confidence in her ability to treat you properly, so she is moving cautiously.
Send me a private message telling me where you live and I'll tell you what I know about the best LLMDs in Maryland.
You won't have to worry about not being taken seriously with a LLMD. You will be treated agressively without the need on your part to demand anything. And, you will get better faster with a doc who has seen and treated hundreds of cases just like yours.
It's great that she has learned and is learning about lyme. But, do you want her learning on you?
Posted by Lymetoo (Member # 743) on :
"She may feel over her head in your case, so she is suggesting a LLMD. I fully agree. In other words, she does not have confidence in her ability to treat you properly, so she is moving cautiously."
+++++++++
I agree! Wouldn't want her learning on ME either!
Posted by justwondering (Member # 12813) on :
Thank you guys, I sent you both PM's!
Lymetoo, I liked that point, too:)
Posted by bettyg (Member # 6147) on :
llmd info sent to her....
Posted by lou4656 (Member # 10300) on :
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