I've recently been diagnosed with Lyme disease.It's pretty scary right now and I'm glad to have a forum to get some help - so thanks! It has happened very quickly - last week had achy joints, then a rash -- turns out I have a strep skin infection and lyme(diagnosed by symptoms and positive blood test)- I was put on doxycl.for Lyme and erthyromycin for the strep. I woke up Sunday with Bell's palsy.
My primary care physician is recommending an infectious disease specialist who is supposed to be good and I'm planning to see him if I can get in, but I wanted to find out about lyme literate doctors. I can travel - Someone told me the town of Hudson which is a couple of hours away has more physicians familiar with lyme than my area and I should find out who is good there.
In addition, my immediate concern is a rash has broken out all over and I can't tell if its a drug allergy, out of control strep, or just another symptom of Lyme (I've been on the meds 7 days so far)and my doctor didn't know either and I can't seem to get into see anyone soon. It's frustrating- any ideas about how this would be appreciated. So I'd like to find appropriate medical help, and to find out if an all over rash is a Lyme symptom.I'd also like opinions on steroids for Bell's Palsy. (I was told by my physician I shouldn't take them because of the strep but wondered if anyone had any suggestions about that too.) Thanks
Posted by bettyg (Member # 6147) on :
ellie, welcome; glad you found us QUICKLY AND RECEIVING MEDS PROMPTLY! *****************************
sorry, NO LLMDS IN EITHER CITY YOUR MENTIONED! **********************************************
so please give us 4-6 LARGE CITIES with the CLOSEST ones being named first ok!! NY has many there!!
DO NOT GO TO INFECTIOUS DOCTOR!! perhaps around 1 dozen GOOD ones nationwide, but they do NOT believe in chronic lyme and treat UNDER 30 DAYS ONLY; NOT LONG ENOUGH. you'll end up like us if you go there and take under 30 days of pills!!!
NO STEROIDS!! suppresses the lyme system! *************
1 exception for me personally are the INHALERS helping me to breath; they help me; others they don't and some react VERY BADLY to them!!
what are the doses mg of both prescriptions; please list ok!!
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WELCOME, would you like a FREE copy of my newbie package of 124 pages info galore sent by LYMENET'S PRIVATE MESSAGE system here; includes TREEPATROL'S LINK of his archive of over 1000 links of good lyme info?
I've been completely REORGANIZING it; NOT DONE YET; but up to page 60 since I have now created a TABLE OF CONTENTS WITHOUT PAGE NUMBERS since it changes DAILY! The part NOT organized yet is the last 30 pages of SSDI, ss disability insurance benefits tips/forms!
also, please go to TREEPATROL'S NEWBIE INFO IN MEDICAL; at top being features; mark it as a favorite! over 1000 links of good lyme info. He/I have some duplicates.
most of mine is very DETAILED info on certain things: SSDI/ss diability insurance benefits; FINANCIAL BURDENS; about IGENEX blood testing, symptoms lists for the basic types, NOIR/no infrared SUNGLASSES, etc. and how to use this board!
If you would like my newbie package, please send me a PRIVATE MESSAGE. PMs are the 2 people standing together icon to right of your name. Just ask me to send you lyme package, and I'll get it to you promptly. Thank you!
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When you post or reply, please break up your solid, continuous block text
welcome to the board! many of us have neuro lyme where we can NOT read long solid block text and be able to comprehend and read it as is.
please edit your post by CLICKING PAPER/PENCIL ICON to right of your name. that opens up BOTH subject line and body text.
now please break up your WORDY SENTENCES into one sentence paragraphs. Then hit ENTER KEY ``THREE`` after each paragraph; we need that space for comprehension.
if you are NOT a wordy person, you can do 2 or 3 total ok. do this for your entire post.
then go to left hand corner and mark box to receive ALL REPLIES, and click EDIT SEND
we thank you for helping us; otherwise, we will SOB, SCROLL ON BY, since we can't read to help you. If I see posts like this, I SOB them; to hard on me. I'm also in the early stages of losing my eyesight from diabetes retinopathy. Posted by Meg (Member # 22) on :
Steroids should not be taken with lyme disease.......sending referrals for NY
Posted by lou4656 (Member # 10300) on :
Ellie -- glad you found us.
I do not know of any LLMDs in Hudson. If you hear of one, please send me a Private Message with the name.
I have friends in Hudson and they would appreciate that information.
Also, did you get names for your area? I can send you some names if you are still looking.
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otherwise, we will SOB, SCROLL ON BY, since we can't read to help you. If I see posts like this, I SOB them; to hard on me. I'm also in the early stages of losing my eyesight from diabetes retinopathy. ![[Frown]](frown.gif)