This is topic Need INFO for my 7-yr-old son just tested + for lyme in forum Seeking a Doctor at LymeNet Flash.


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Posted by Jessibell777 (Member # 18235) on :
 
Hi, I'm COMPLETELY new to all of this. We went camping mid OCT. My 7-yr-old son got a fever oct.31 until Nov. 17. No other symptoms except joint &muscle pain/fatigue. The infectious disease MD tested him & deduced that he got the Epstein-Barrs Virus/Mono. He also tested positive for lyme, but she says its probably a false positive. We're waiting for the Western Blot test to come in on Monday. He never had any throat symptoms (for Mono). It just doesn't seem like he had mono. I know that LD can mimic other viruses. I'm scared. What do I need to do right away, then next, then next. Any help and/or advice would be greatly appreciated.
 
Posted by bettyg (Member # 6147) on :
 
check my profile for KIDS LLMD ok!
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which lab is doing western blot igm and igg? most do NOT have lyme specialty equipment.


see my newbie package link below; you can read about that there using table of contents ... IGENEX.


do NOT go to INFECTIOUS DRS.! they don't believe in chronic lyme and UNDERTREAT meds up to 3 wks. only ... not long enough.


you are lucky; your son was RECENTLY BITTEN and has a good chance of being cured if treated properly and LONG ENOUGH!


read/print off dr. burrascano's lyme guidelines from below link; page 17 addresses KIDS MED AND DOSAGES OK!


Welcome; i'm so glad you found us!! You've come to the right place for education and support!


Dr. Burrascano's most recent "Diagnostic Hints and Treatment Guidelines for Lyme and Other Tick Borne Illnesses" @

http://www.ilads.org/burrascano_0905.html

suggests that you discuss with your doctor continuing treatment until you are symptom free for 2 months.


this link, making the most of your LLMD visit, may help you also.
http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic&f=1&t=020605#000005


please see BettyG's newbie package info on the link below; click on link at bottom of my package. Check it out as time permits for you!
@ http://tinyurl.com/58eyou


Fyi: we have over 1000 viewers daily; 200 - 400 posting/replying; so specific titles get our time/replies. non-specific ones, i sob, scroll on by!

Also, please be very specific in the subject line what you will be discussing so more people will be able to assist you.

***************

please go to my newbie links, copy the entire thing, and then print this off....


financial burdens compiled by melanie reber
pages 74 - 92; outstanding info there.


also in my table of contents, for FINANCIAL BURDENS, i believe there are a few more general comments there without links!! print that off too as it's newer info from members thru their own personal, tragic experiences.
thoughts and prayers headed your way..


Betty's POSTING GUIDELINES

When you post or reply, please break up your solid, continuous block text [Smile] welcome to the board! many of us have neuro lyme where we can NOT read long solid block text and be able to comprehend and read it as is.


please edit your post by CLICKING PAPER/PENCIL ICON to right of your name. that opens up BOTH subject line and body text.


now please break up your WORDY SENTENCES into one sentence paragraphs. Then hit ENTER KEY ``THREE`` after each paragraph; we need that space for comprehension.


if you are NOT a wordy person, you can do 2 or 3 total ok. do this for your entire post.

NOTE: you do NOT have to use "", just show the name of person you are responding to, and then type your comment.


IF you need to use "", PLEASE DELETE "BOLD" CODES so it's regular type text we read vs. the DARK, HARSH/PAINFUL BOLDING.

specifically, delete the first 4 characters of 2ND LINE of a ""


[QB] just delete these 4 characters, and BOLDING is GONE! my eyes will really appreciate that; it's one very bad side effect of my having lyme for 38.5 years!! xox


then go to left hand corner and mark box to receive ALL REPLIES, and click EDIT SEND


we thank you for helping us; [Wink] otherwise, we will SOB, SCROLL ON BY, since we can't read to help you. If I see posts like this, I SOB them; to hard on me.
 


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