I have been experiencing a lot of the symptoms of Lyme Disease for many years but attributed to getting older. I'm not sure if I have the disease or not since I don't remember having a rash, although I know that it does not always present, I want to at least rule it out. I am in Charlottesville, VA but I don't think that there any specialists here....at UVa....imagine that! Anyway, if someone could please PM or email me a list of Virginia Specialists, I would certainly appreciate it.
Thanks,
D
Posted by Abxnomore (Member # 18936) on :
Please check your private messages for the LLMD list for Virginia and information regarding ILADS, Dr. B's guidelines and lots of helpful links.
Do join in the discussion in our ``medical section'' for additional help, education and support. It's a great place to learn more about this very complex illness. You can also find your local support group on the left hand side of this web page for additional help.
Posted by Big D (Member # 22737) on :
I certaily will. Thank you for your help!
Posted by bettyg (Member # 6147) on :
welcome big d
check your profile above for virginia llmds
Welcome to Lymenet! I'm so glad you found us! You've come to the right place for education and support!
The following is some links that may be helpful to you:
People seeking doctors might be able to get help from their state online information and support group. Nearly 3,400 people belong to state groups. Some of the groups are small but more than 20 of them have 50 or more people and seven have over 100.
The groups are moderated and you have to apply. Most don't allow doctor names, but once on the group, you can ask for doctors in a certain area and ask people to email you privately.
This explains the medical politics around Lyme, and why you need an ILADS-educated or ILADS-member LLMD (and there are also some ILADS-member LL NDs (naturopathic doctors):
ILADS The International Lyme and Associated Diseases Society (ILADS) provides a forum for health science professionals to share their wealth of knowledge regarding the management of Lyme and associated diseases. www.ilads.org
They will also send you a ``test kit'' with their required form, all the test vials, & box to ship it in. Be sure to download Igenex's required form. MD, DO, ND, AC, DC are all fine** must sign, date, and show diagnosis code on there why he's ordering the test.
Optional tests include: co-infection panel for your area of country and PCR whole blood
Igenex is pre-pay/out of network for most insurances. If you are on medicare, Igenex will file the paperwork & it's free to you.
Betty's suggested posting guidelines: Many of members have neuro lyme, and it is hard to read long solid block text and be able to comprehend.
For easier reading, please edit your post by clicking the ``paper pencil' icon to right of your user name, which opens up the subject line and body text.
You can break up your longer paragraphs into smaller paragraphs. Please hit ``enter'' key twice after each paragraph, also.
Go to left hand corner and mark box to receive `all replies', and click edit send.
Thank you for posting in a manner that makes it easier for all to read and help others.
Posted by Big D (Member # 22737) on :
Thanks Betty. I will be hard at work reading all this info.
Posted by sbeck (Member # 20451) on :
This is my first post (how do you make a new post?) I was diagnosed with Lyme in 1983 and treated for a year. Have never worked with a Lyme Literate Dr. Have been dealing with chronic illnesses my whole life. Am ready to begin seeing a Lyme Literate Dr. and I live in Harrisonburg, VA, about 1 1/2 hrs from N.VA, 1 hr from Charlottesville, 2 hrs from D.C. Will drive to see the best Dr. as I am very ready...! can anyone steer me the best direction of Dr. and to a support group near my area? Thank you so much.
Posted by sbeck (Member # 20451) on :
Big D--I'm just an hour from Charlottesville, so if you learn anything, please do let me know as I am looking for a Lyme Literate Dr. also. Also, any good support groups in our area. Thanks! Susan
Posted by Abxnomore (Member # 18936) on :
Please post ALL NEW REQUESTS for a doctor in a ``NEW AND SEPARATE POST'' by clicking on the Icon that says "Post New Topic" on the top of this web page.
Our volunteers, who help with LLMD referrals, look for "NEW" requests and don't go back to look at older Topics that have already been answered. We would not want your request to go unnoticed and unanswered.