This is topic LL Neuro in IL? in forum Seeking a Doctor at LymeNet Flash.


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Posted by catdog (Member # 26365) on :
 
I've been treating lyme with LLMD since 7/2010 and, while things were slow at first, I am making progress!


I can actually THINK again, I'm not in some black fog. I have gained a little strength managing to blow dry my hair in the standing position with arms over my head instead of hunched over with elbows on knees! And the rage is subsiding which I know my family is very happy about!!


One thing that has not improved is nerve pain and muscle cramps. I ended up in the ER in Oct of 2010 because of severe chest pain and leg numbness. The ER doc recommended I see a Neuro. which I did, and to no surprise, he did not agree with the lyme diagnosis. He wanted to do a spinal tap to diagnose lyme but with the advise of my LLMD, I did not have it done.


LLMD has given me some meds to help me sleep at night (that's when the symptoms are the worst) and recommended I take cal/mag/zinc for the cramps. I also take alpha lipoic acid. But even with that, it doesn't seem to be helping.


One symptom that has gotten even worse is headaches. I used to get them once or twice a month but now it's a few times per week! I am so grateful that I found my LLMD here and I'm wondering if there's a way to find an LL Neuro in IL?
 
Posted by METALLlC BLUE (Member # 6628) on :
 
I'm not sure I can be of much help but I can try. Check your PM.
 
Posted by catdog (Member # 26365) on :
 
thanks MB! i wasn't on for a while, LLMD switched up meds and i was herxing pretty bad. i just checked my inbox and responded to your message. thanks for the help!
 


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