Hi there! I was diagnosed with ALS in July 2010 but tested positive for Bartonella and Erhlichia in April 2011. Igenex came back negative but don't have the results myself. I need a llmd, support group, and everything else because things are failing fast! Please help!
Posted by upstatelymee (Member # 31479) on :
I'm from syracuse and haven't had any luck finding an LLMD anywhere close to me. Everyone seems to be in or around NYC. PM me if you do find someone upstate.
Posted by rera2528 (Member # 29886) on :
PM sent.
Posted by TS96 (Member # 14048) on :
We have a nice support group in Farmington NY. Half way between Rochester and Syracuse. PM me if you need further info.
Posted by jenn (Member # 21687) on :
PM sent
Posted by littlebit27 (Member # 24477) on :
Sent you a PM
Posted by Susie R (Member # 30780) on :
pm sent
Posted by momlyme (Member # 27775) on :
Sent PMs to chucky and upstate.
Posted by upstatelymee (Member # 31479) on :
new support group I found out about. Syracuse, NY Onondaga Free Library on Onondaga Hill 3rd Monday of the month, 7 pm
Posted by AnnaOD20 (Member # 29942) on :
I am followed by an integrative dr. practice outside of Albany. Not sure where you are but if you want the info send me a PM.