for daughter 16 diagnosed with "amplified pain syndrome" Asked doctor to test for Lyme and told we don't have it here. BS. At least want her tested. Thanks.
Posted by Lymetoo (Member # 743) on :
Each forum also has special links at the top of each page containing information you may find helpful.
Posted by ladyjenie (Member # 21098) on :
smp1964, I don't live far from you. Please PM so we can exchange information.
I also have severe pain but didn't know a doctor in Texas had the brains to call it "amplified pain syndrome" but it does make sense that our bodies get wrong signals and turn on us causing pain on every inch of our body.
Has she been dx'd. as "auto-immune"? Mine is and I have taken Remicade, Enbrel, Methotrexate, steroids, Celebrex, etc., and now on 3 Plaquenil a day w/o much help to reduce the inflammation.
Like TuTu said, in the Medical Questions section there is a lot of help and it's some interesting reads. I have learned more from this site than any of the books I've read. These people have treated many years, some using the best Lyme docs, and trying many protocols. They are way ahead of anything we have in Texas.
I am so sorry your daughter is going through this. It makes me sad to hear that children can't enjoy just being children.
