It's been almost a year since I was diagnosed with babesia. I've been unable to handle babesia meds because of increasingly severe GI problems.
In late 2011 I had bicillin injections for 3 months for Lyme & any other TBD that bicillin will hit (was dx'd with Lyme in 2000 & 2006, so it's there). The bicillin produced no results. So everything may be a babesia problem and I've had no treatment for it.
My symptoms support a diagnosis of Bell's Palsy of the Gut, and a new CT scan does too. But the local GI docs never heard of such a thing, and they're suggesting a motility study. My stomach and intestines started slowing down months ago and now I can't eat at all. So why prove it with another test?
Besides, they say if the test proves reduced motility, they'll prescribe Reglan. Terrible side effects and it does nothing but treat symptoms, if you're lucky enough to avoid tardive dyskinesia.
If there's a doc who understands how TBDs can affect the gut, that could be a lifesaver. Literally. If I continue to be unable to eat, what next?
I'm in Maryland. I'll see my LLMD tomorrow, but he's been saying for months that he doesn't like to think about Bell's Palsy of the Gut because it's so hard to treat. So he's had me remove root canals, do mercury chelation, IgG shots, and herbal tinctures. None of these has helped.
Two weeks ago I suddenly declined drastically, became limited to juice and crackers. But at least I could eat; today it's juice only. Not protein shakes like Ensure--I can't handle anything that heavy. Just juice diluted with water. So I'm in trouble.
Any help would be greatly appreciated. I'll also post this on the "Medical Questions" board just in case.
Posted by Terrilth (Member # 37233) on :
Peggy I sent you a private message.
Posted by hopingandpraying (Member # 9256) on :
Click on "Support Groups" in the upper left-hand corner of the Lymenet page, then the state you are looking for. Contact information will come up. Maybe they can help you.
Posted by Keebler (Member # 12673) on :
- GLUTEN?
You mentioned crackers. Just to be sure, I hope your current doctor has suggested DNA / genetic tests for CELIAC.
Even if negative, hope you're on a gluten-free diet as that has saved me from sheer torture of the gut.
Even if not celiac, most LLMDs strongly suggest that those with lyme avoid gluten until a good remission has been achieved.
DAIRY, CORN, SOY ?
I assume you've done avoidance diets with all of these.
PARASITES?
A few LLMDs are now seeing the co-existence of parasites with lyme and addressing this issue. It might be best if you found one who is up to speed on this part of the treatment.