This started when i was ten... About 25yrs ago. I was bit by a tick. Found out 2 yrs later that i had Lymes. Fought it with so many pills a day, didnt work. Doc put me on home I.V. Treatments. Didnt work either.. Finally went in hospital when i was 17 and knocked it into remission. I been feeling bad for nearly 6 yrs now and felt like it was back. I had doc do Lymes titer in march this yr. IgG came back high, also abnormal at 1.22...IgM was also high, abnormal at 1.82. Doc says he not worried bout igg cuz its not that high but worried that IgM means i had new bite, which i kno i didnt. seems like he tryin to find another reason for my symptoms... :-( so sad cuz he not helpin me
Posted by Murphyportillo (Member # 36898) on :
I was researching lymes and it says if IgM are high, it means a new infection or could also mean lymes is been reactivated... I seriously believe its been reactivated. The doc im seeing is in a Lymes Center in nj, so i thought he was gonna be good but when i saw this guy omg he must be in his 80's . He asked what my symptoms are... Im always tired. Even if i sleep for 12 hours... I have bad headaches all the time. My body hurts in every joint... Even if im just layin in bed , my legs start hurting. My short term memory has been effected... For past 3 yrs now my mem is getting bad. I think he is wrong... Like i told my husband... I kno what i feel, its not in my head :-( doc makin me feel like it is tho
Posted by hopingandpraying (Member # 9256) on :
You might also want to click on "Support Groups" in the upper left-hand corner of the Lymenet page, then the state you are looking for. Contact information will come up. Maybe they can help you.
Btw - please break up your post into 2-3 sentence paragraphs, as there are people on Lymenet who cannot read large blocks of text due to neurological problems from Lyme. Thanks.
Posted by Pocono Lyme (Member # 5939) on :
PM sent
Posted by Murphyportillo (Member # 36898) on :
Pocono... Tried to send mess back but ur mail is full
Posted by Murphyportillo (Member # 36898) on :
Someone else told me to call him too... But he not accepting any new patients with my insurance... So ill be stuck tnis way and eventually it will be the death of me. I saw dr p of nj... He is lookin for another reason for my syptoms which is stupid cuz its in black and white in the test results i gave him... But he ignoring it. He says my IgG is high at 1.22 but not high enough to give him reason to worry but my IgM is high too at 1.82. He says that means i was bit recently... But i kno that it means lyme is reavtivated
*edited Dr name and city per Lymenet rules*
[ 05-11-2012, 07:24 PM: Message edited by: Dogsandcats ]
Posted by Murphyportillo (Member # 36898) on :
It was winter and i dont go outside in cold... I have not had a tick on me since i was a kid... I have become afraid to be outside long.. And if i did have a tick, i would have had to pull it off cuz they dont just take a bite and fall off. That dr that i saw is in need of more schooling i believe.
Posted by TF (Member # 14183) on :
Murphy, you have to edit your post and take out the doctor's name and city.
It is against the rules of LymeNet to use lyme doctors names and to give their city. You can only give their state. You can only use the first letter of their last name.
People can't read your posts because you have too many sentences in a row without any white space.
To get more folks to read your posts, break them up like my post is broken up.
Your will get a lot more help that way!
Posted by TF (Member # 14183) on :
The doc you just saw is really not a lyme doctor.
Get to a good lyme doctor and you won't have to put up with that kind of stuff.
Do your homework and get yourself a good one. You want to talk to a few patients of the next doctor you are considering.
You want to find out if he follows the Burrascano protocol or not.
There are a lot of junky lyme doctors out there. I have heard a lot of complaints from people in New Jersey about how bad some of them are.
So spend a lot of time--a LOT--looking into the next doctor before you pay the money. Contact the lyme support groups in your state (see Support Groups on left side of page) to see who they say is good. And when you are seriously considering a certain doc, post here on LymeNet and ask about that doc.
Remember to just use the first letter of his last name and don't give the city where he practices.
I have no doubt you still have lyme disease.
I hope you know that the doc is the key to getting rid of this horrendous disease. Can't emphasize that enough. The doc is the key.
Many doctors treat lyme disease, but only a handful actually know enough to get rid of it for a person.
You have had lyme for a long time now, so you really need a top notch doc to get rid of it for you.
If you can't find a really top notch doc in your area, I know of a few. But, they will require you to travel for the first appointment only. After that, you can have telephone appointments.
Let me know if you want their names. One is in D.C. (you can take the train right to D.C.--no sweat, only takes 3 hours) and the other is north of New York City about an hour or so.
I got rid of lyme disease 7 years ago. I had to go to 3 different doctors. You learn as you go. So, I stick around here to give folks the benefit of my experience.
Also, a good lyme doctor is going to be expensive. You are paying for their expertise.
If you have not already read the Burrascano Lyme Treatment Guidelines, I strongly suggest that you do. They are here:
"GENERAL PRINCIPLES In general, you can think of LB as having three categories: acute, early disseminated, and chronic. The sooner treatment is begun after the start of the infection, the higher the success rate. However, since it is easiest to cure early disease, this category of LB must be taken VERY seriously.
Undertreated infections will inevitably resurface, usually as chronic Lyme, with its tremendous problems of morbidity and difficulty with diagnosis and treatment and high cost in every sense of the word." (page 3)
Your lyme was undertreated in the past. So, like it says above, it has resurfaced.
I strongly suggest you only go to a doctor who follows the Burrascano Guidelines. This way, you can actually get rid of this disease for good.
Posted by Pocono Lyme (Member # 5939) on :
PMs cleaned out. Sorry
Posted by Murphyportillo (Member # 36898) on :
Pocono.. The message that states doc name was actually meant for ur inbox.. Sorry forgot not to mention his name and location ... Il be careful next time