Hi all! I am 30 year old female from long island who currently undergoing my second round of lyme treatment. The first time I was 26 and was treated my oral antibiotics that did not help, therefore was put on a midline, Rocephin for 28 days. Doctor wanted more but, of course, insurance would not pay. This time arround my symptoms are so much incredibly worse. At the risk of sounding super dramatic, somedays I feel I am dying. Anyway, the point of this message is that this time, after 2 months of oral antibiotics, I was given a PICC line while in the hospital for a week, and I am coming to the end of my 28 day treatment. My primary doc wrote me a script for another 2 weeks but I am not exactly optimistic that it will be covered by insurance. That is where I am now....the waiting game. I should know by tomorrow. So I am looking for a lyme literate doc somewhere in NY. I feel desperate because I feel once this PICC is taken out of me, my "life line" is no longer available. And I know I will never get it put back in again, looking back at how hard it was to get it in the first place. So, all I am asking is for a doctor in NY, not a primary doctor, preferrably a Specialist, who would hopefully be willing to fight for me, because I, along with many medical professionals I have spoken with, seem to think the minimum dosage of treatment is 12 weeks, especially for someone as extremem a case as mine. If anyone knows of anyone, I would love to hear your experience with LYME and the doctor that you are recommending. My last dose of meds is this friday, unless insurance covers another 2 weeks. So I consider this a bit of an emergency. Thank you so much to anyone who reads this post. I wish everyone suffering with this AWFUL disease to hold onto hope and know that you are never alone. Thanks again for listening. - JJML
Posted by Lymetoo (Member # 743) on :
HI jjml!!! Welcome to Lymenet!!
I'm going to repost your story over in Medical because you need urgent help and advice. Not many come here to Seeking and I am really not sure who to send you to.
Someone here from NY should be able to help you! Is there any chance you can pay out of pocket for the IV??
Posted by Lymetoo (Member # 743) on :
Btw - please break up your post into 2-3 sentence paragraphs, as there are people on Lymenet who cannot read large blocks of text due to neurological problems from Lyme. Thanks.
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