Had severe tick rash in 2009... but "negative" test. I saved the tick, but to my knowledge it was not tested. Have been diagnosed with multiple (?) illnesses since: SIBO, Myositis, Neuralgia, L5 disc herniation, and muscle atrophy. I have chronic muscle/joint pain and severe lethargy.
Now, I am experiencing, headaches, buzzing/popping ears, short term memory loss and of course, depression.
A referral would be most welcome.
Rob M.
Posted by Lymetoo (Member # 743) on :
I will send you info. There aren't any LLMDs in STL at this time.
Posted by Lymetoo (Member # 743) on :
quote:Originally posted by Rob M.:
Had severe tick rash in 2009... but "negative" test. I saved the tick, but to my knowledge it was not tested.
- The bullseye rash is diagnostic of Lyme disease; no test needed. An early test would turn up negative anyway, so no point in it.
Do you still have the tick? You could get it tested but it could still come back negative. That happened to me.
Posted by Rob M. (Member # 40082) on :
I have attempted to familiarize myself with testing information and I now realize I should have been re-tested; that the anti-bodies may have been too low, correct?
The PA who examined me diagnosed me with tick-born illness and I, if I'm correctly remembering, was given 14 days of doxy, I'd have to check records to be certain.
Anyway, I have no idea what the clinic did with the tick.
Is it advisable to have the testing now?
Rob M
Posted by Lymetoo (Member # 743) on :
I would suggest the Western Blot by Igenex Lab. The Dr I gave you info about will be happy to test you. You could get a WB thru LabCorp or Quest, but it is likely to come back negative. (Those lab tests are not as sensitive, but worth a try.)
Sadly, you were under treated and now will have to play catch up.
Here is info on the Western Blot and other Lyme info:
See listener comments, too. They show us how very wrong of the ID (Infectious Disease) doctor who was interviewed. Very typical, though, and why ID doctors are not the ones who help those with lyme.
Neurologists & rheumatolgists also follow the same umbrella group (IDSA) that ignores lyme and discounts those who have it.
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