I am not sure if I am breaking any rules by posting a link to this website...but wanted feedback from any members who have visited with him and used his protocol...?
Websites like this make me worry that ABX's are doing more harm to my brain than helping... Posted by Keebler (Member # 12673) on :
- Websites like that can be dangerous for those with serious infections, too, that they do not target. They do not adequately address borrelia. Not even close. The support they offer can be very good but the infection targeting part is severely lacking.
Lyme, itself, can damage the brain, etc. It must be specifically addressed by various methods.
First, it's important to find an expert in lyme disease. The doctors at this clinic are not lyme literate, nor ILADS educated.
Most ILADS LLMD and LL NDs are well aware of the support measures that help the body better tolerate treatment and protect the body as much as possible.
All the "natural" methods in the world will not help with lyme unless they are very, VERY specific and can target, working with the "science" of lyme.
If you are inclined towards "natural" treatment, be aware that even many of the the LL NDs may incorporate antibiotics along with support measure.
And there are some "natural" approaches that are very well researched and thought out. Still, ONLY someone who is ILADS educated and truly "LL" will have the science background to know how to approach all this.
There is also RIFE to consider. -
Posted by Keebler (Member # 12673) on :
- When considering herbal / nutritional / adjunct methods:
if at all possible - because each person & each case is different - it's best to consult with an ILADS-educated LL ND (lyme literate naturopathic doctor) (or similar) who has completed four years of post-graduate medical education in the field of herbal and nutritional medicine -
- and someone who is current with ILADS' research & presentations, past and present, and has completed the ILADS Physician Training Program (see: www.ilads.org )
Many LL NDs incorporate antibiotics (depending upon the licensing laws in their state). Some LLMDs and LL NDs have good working relationships.
When possible, it's great to have both a LLMD and LL ND and even better when they have a long-standing professional relationship.
Be aware that integrative doctors can have various levels of formal herbal &/or nutritional education, perhaps even just a short course. Do ask first. Some have learned on their own from experts in the field. There are many ways to acquire knowledge and most are eager to share basic details about their training. You want someone with a deep knowledge.
Some of the specialities above may not actually treat lyme yet, for things such as physical adjustments, it is just good that they are also LL, at least to some degree (to know never to suddenly twist the neck or spine).
Links to many articles and books by holistic-minded LL doctors of various degrees who all have this basic approach in common:
Understanding of the importance of addressing the infection(s) fully head-on with specific measures from all corners of medicine;
knowing which supplements have direct impact, which are only support and which are both.
You can compare and contrast many approaches.
BASIC HERBAL EDUCATIONAL & SAFETY links,
BODY WORK links with safety tailored to lyme patients,
It's not all about killing the bugs...but you have to kill the bugs first...then deal with the rest.
Posted by twinnick (Member # 43163) on :
When do you know the bugs are dead and the remaining symptoms are from the "rest"?
By rest I am assuming you are talking about cleansing and restoring the immune system...?
Posted by Keebler (Member # 12673) on :
- Good question: "When do you know the bugs are dead and the remaining symptoms are from the "rest"?" (end quote)
Unfortunately, that is not how lyme works. It's not like other infections at all. There are various forms, cycles, etc. The coinfections are a huge part of this, too. The different forms of lyme, coinfections, each need their own approach, too.
This is why it's so important to have an ILADS educated LLMD or LL ND.
Support is essential, absolutely, but it is never enough, alone.
The "rest" -- various points of considerations vital to treatment that lax mom refers to -- see the link she posted for that new books. It details 16 vital points for lyme / TBD treatment. -
Posted by lax mom (Member # 38743) on :
twinnick: plus that link has the first chapter for free.
Posted by Lymetoo (Member # 743) on :
That clinic is not a good place for Lyme in general.
Moving to Seeking a Doctor
Posted by Keebler (Member # 12673) on :
- This is not the first time this clinic has been queried regarding lyme. There have been several past posts. So the answers you are getting now are also based on the experiences shared over time.
You can search the archives and ask at ALL the lyme support groups within a several hundred mile radius to any doctor or clinic that you consider.
Bottom line, though, if they don't know the history and are not current with the work of researchers & front line doctors who present at the various ILADS conferences each year, they simply won't know enough to begin to treat someone with lyme / TBD.
If they've not completed the ILADS physician's training program (which is just a start to this vast and complex "sub-specialty"), I would never trust them to know even the basics required.
Beyond that, there is plenty of room for innovation and experimentation. But there is no substitute for being grounded in the science and as thoroughly lyme & TBD literate as possible.
Good luck. -
Posted by Keebler (Member # 12673) on :
- twinick,
lax mom posted a blog article about this book above. Here's the Amazon link. Also see the reader reviews, etc. 79 five-star reviews. Reading those will give you a good perspective on the task.
This new book will also help you know what to look for in a LL doctor and how to better construct your part of the plan:
Why Can't I Get Better?: Solving the Mystery of Lyme and Chronic Disease
- by a leading ILADS LLMD - released Nov. 2013
---------------------
Yet, on excellent reader review from someone who treated with the author / doctor bring home the fact of cost and that none of this is covered by insurance.
So, for many who may still be feeling cut out, the book does offer insight in at least the priorities and there are other ways that we might address some matters. -
Posted by Judie (Member # 38323) on :
Yikes, I just read the protocol on their website.
I really don't like that they have a "proprietary" IV treatment. Sheesh. If you have something that helps Lyme patients, share it!
It seems very against antibiotics and into "boosting" your immune system. I've already been down that road. Alone, it does not work for Lyme and its complexities.
Lyme destroys the immune system. You need to focus on getting rid of the Lyme. The immune system isn't strong enough to do, that's why you need antibiotics.
Support is good. Understanding weaknesses in your genetic make-up is good (you can get your 23andme results analyzed several places for free or cheap).
Antibiotics shouldn't be a last resort though with Lyme. That's how many people I know have gone chronic (including myself) is delaying antibiotics.
There's their protocol link if you really want to read it:
I know someone personally that went there for several weeks. She got some answers but they were the same answers I'm going to be getting for $99 from 23andme.
She couldn't tolerate any protocol for lyme & co. Everything slammed her to the floor. My friend went because she had heard that Yolanda had gone there. My friend is one of those people that doesn't have the ability to detox, therefore everything including things that should helpful are the opposite for her.
They didn't help Yolanda much either. Yes, they can tell you some genetics about your body. My friend just about lost it while she was there from the IV stuff they gave her.
Twin, you might want to make personal/email contact with someone that did this first before you spend those big $$,$$$? Besides someone that is paid to promote this place and protocol!
Pam
Posted by Lymetoo (Member # 743) on :
I would be especially leery of a clinic that can't spell "herxheimer."
![[Frown]](frown.gif)