So, what you have in the way of neurological symptoms is typical, I am afraid.
Also, lyme doctors are few and far between. To find one who is a neurologist would be virtually impossible. The one neurologist that I know of that understands lyme disease does not treat lyme patients. So, you just are not going to find that combo.
I suggest you study the Burrascano Guidelines referenced above. As you will see, you may need IV antibiotics due to the neurological involvement. Here is another quote for you from Burrascano:
"INDICATORS FOR PARENTERAL THERAPY (The following are guidelines only and are not meant to be absolute. It is based on retrospective study of over 600 patients with late Lyme disease.)
· Illness for greater than one year · Prior immunosuppressive therapy while infected with Bb. · Major neurological involvement · Active synovitis with high sedimentation rate · Elevated protein or cells in the CSF"
(page 21 of Burrascano Guidelines)
If you are getting worse with Dr. E, then it is wise to find a better doctor. The one I am thinking of will put you on IV, and he follows the Burrascano Guidelines which is the most successful lyme treatment protocol in the world.