We are in Southeastern CT. I have tested positive for Lyme and it seems it is chronic no idea how long I have had it but it is effecting my cognitive abilities, my coordination, and more. Unfortunately my 4 year old son tested positive as well and his pediatrician thinks I may have passed it en utero. I don't know what this will mean for my son but we need help. Its possible my daughter and husband may need treatment as well. I have gotten the standard 20 days of antibiotic and I have been on herbs recommended by a ND but I feel I need an ILADS or LLD. We have UnitedHealthcare for insurance if anyone out there takes that. Please help. Much appreciated!!!
Posted by t9im (Member # 25489) on :
Hi blondemac:
Welcome to lymenet. Hopefully others here will be able to help as well.
1) I will PM you with my list of CT LLMD's, which includes those who treat children.
2) All good LLMD's don't take insurance. They don't follow the IDSA treatment protocol and have ended up not being allowed in the insurers network.
3) You are just starting out on the journey to recovery. Be aware there is a controversy within the medical community on both the diagnosis and treatment of Tick Borne Diseases.
Since you fee you need an ILAD's MD then you are starting to understand BUT it is much worse than most can imagine.
Good luck and don't hesitate to ask questions.
Posted by hopingandpraying (Member # 9256) on :
Welcome to Lymenet! PM sent for CT.
When calling for an appointment, ask if they have any cancellations or a waiting list. Patients have been able to get in sooner by doing this.
Most LLMDs do not accept insurance due to the politics surrounding this horrible disease.
Read poster TF's explanation, "Why Lyme Doctors Don't Take Insurance":
Btw - please break up your posts into 2-3 sentence paragraphs, as there are people on Lymenet who cannot read large blocks of text due to neurological problems from Lyme. Thanks.
Posted by Nancy2 (Member # 95) on :
PM Sent!
Posted by aleyna (Member # 43940) on :
My daughter was cured by an herbalist in Woodbury, CT. The LLD were of little help and very costly. This herbalist has an amazing record with Lyme. Her herbs have absolutely no side effects. If this is something you want to consider, let me know and i will give you all the information.