My husband was recently diagnosed with Lymes disease and we need to find a doctor near that knows something about it.
Posted by hopingandpraying (Member # 9256) on :
Welcome to Lymenet! PM sent for VA.
I don't know of any in WV.
Your husband needs to be evaluated and treated by a Lyme-literate doctor (LLMD). Non LLMDs have no clue about this horrible disease or its complex treatment!
Unfortunately, LLMDs are far and few between. You need to go where they are.
Also, most LLMDs do not take insurance due to the politics surrounding this disease. Read poster TF's explanation about this:
[ 08-28-2014, 07:02 PM: Message edited by: hopingandpraying ]
Posted by Lymetoo (Member # 743) on :
You might also try searching for support groups on Facebook.
Posted by TF (Member # 14183) on :
How far are you willing to travel? If you are willing to come as far as the Washington, D.C. area, there are good ones there.
From what others have told me, the ones in D.C. area are better than those in the Pittsburgh area.
Don't know where you are in WVa. or what cities are close to you.
At least half of all lyme patients travel out of state for their care, so this is not unusual. Choose a doctor who will allow telephone visits monthly after the first in-person visit. Then, you are only traveling there a few times per year.
You can also contact the support groups in your area. See Support Groups on the left side of the page.
There just aren't that many lyme doctors, and since this disease is so very complex, you want a doctor with a lot of expertise. That gives you the best chance of getting rid of it.
If you want the name of the doc near D.C., send me a private message. Just click on the envelope icon above my post.
Welcome to LymeNet. We will help you all we can.
Posted by lymie_in_md (Member # 14197) on :
Misty,
I found this site and this is not a list of LLMD's, but you should know about them. hopingandpraying, 22 and tf please look at this and should there be some caution given for using this kind of site ?
I've seen lists like this before, lymie in md. They list all of these infectious disease doctors and neurologists who SUPPOSEDLY treat Lyme.
I would not go to one of them on a bet.
Posted by hopingandpraying (Member # 9256) on :
Very interesting, lymie_in_md. I have not seen that list before. Thanks for bringing this to our attention.
I would agree with Lymetoo. The best way to find a real LLMD is getting personal references and contacting the local Lyme Support Group.
Posted by lostlyme (Member # 38561) on :
I have seen a lot of doctors who are listed in my state , and told me I was old , crazy ,depressed , ms , lupus , Parkinson's , etc .
My opinion I would not use it or add any doctors to it or any information what so ever.