LymeNet Flash: Lyme Litterate Neurologist

This is topic Lyme Litterate Neurologist - NY in forum Seeking a Doctor at LymeNet Flash.

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Posted by Pjbuehler (Member # 45064) on :

Hello and thank you all for letting me join. I've been treating Lyme for over 2 years with a good LLMD and am gradually improving. My doctor said I should also see a neurologist to check out some persistent neurological symptoms. He is not aware of any that are LL so I'm wondering if anyone here knew of any neurologists in the upstate NY,specifically Albany area? I drive to Rhinebeck to see my doctor so within 80-100 miles is workable.

Thanks very much!

[ 12-12-2014, 02:45 PM: Message edited by: Robin123 ]

Posted by hopingandpraying (Member # 9256) on :

Welcome to Lymenet! PM sent for CT.

It's very good that you are under the care of a LLMD.

I don't know of any LL Neurologists in upstate NY.
They are far and few between, unfortunately. You need to go where they are.

Also, most LLMDs do not accept insurance due to the politics surrounding this horrible disease. Read poster TF's explanation, "Why Lyme Doctors Don't Take Insurance":

http://flash.lymenet.org/scripts/ultimatebb.cgi/topic/2/15615?#000005

When calling for an appointment, ask if they have any cancellations or a waiting list. Patients have been able to get in sooner by doing this.

Check the online state Lyme groups at:
https://groups.yahoo.com/neo/groups/NewYorkLyme/info

Maybe they can help.

Some more resources for you (including Support Groups info):
www.lyme-aware.org/new-york.html
www.empirestatelymediseaseassociation.org

Read the new book written by Dr. H, the top Lyme-literate doctor, entitled, "Why Can't I Get Better?". It is an excellent source of information.

Also "Cure Unknown" by Pamela Weintraub. Check your local library or buy it used on Amazon.

View "Under Our Skin" for free on www.hulu.com

Btw - please break up your posts into 2-3 sentence paragraphs, as there are people on lymenet who cannot read large blocks of text due to neurological problems from Lyme. Thanks.