This is topic LOOKING FOR LLMD Pa, NJ, NY MD in forum Seeking a Doctor at LymeNet Flash.


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Posted by Vanessa Rowan (Member # 46128) on :
 
I got bit by a tick three weeks ago and I need a Lyme doctor. I have read that time is of the essence with this thing, and if I can get to one soon enough and get treated properly, I can avoid long term problems. Please help!!! I live in Pa, but can travel to surrounding states. I don't want it to get any worse. My first test came back negative, but I have all of the symptoms and was bitten by a deer tick in a high risk are. Any help asap would be so kind!!! [EMAIL]plathiansexton @gmail.com[/EMAIL]
 
Posted by hopingandpraying (Member # 9256) on :
 
Welcome to Lymenet! PM sent for PA & MD.

You need to be evaluated and treated by a Lyme-literate doctor (LLMD). Non LLMDs have no clue about this horrible disease or its complex treatment!

A LLMD is one who has treated Lyme disease and the co-infections which come with it for many years and has gotten patients well. A good one will follow Dr. B's Guidelines, the "gold standard" for Lyme treatment.

Here is a link for them:

http://www.lymenet.org/BurrGuide200810.pdf

Unfortunately, LLMDs are far and few between. You need to go where they are.

Also most LLMDs do not accept insurance due to the politics surrounding this horrible disease. Read poster TF's explanation, "Why Lyme Doctors Don't Take Insurance":

http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=2;t=025539;p=0

When calling for an appointment, ask if they have any cancellations or a waiting list. Patients have been able to get in sooner by doing this.

Check the online state Lyme groups at:
https://groups.yahoo.com/neo/groups/PennsylvaniaLyme/info

Maybe they can help.

Some more resources for you (including Support Groups info):
www.lyme-aware.org/pennsylvania.html
www.lymepa.org [Note: they are very knowledgeable]

http://www.lymenet.org/SupportGroups/UnitedStates/Pennsylvania/

The top LLMD, Dr. H, has written a new book entitled, "Why Can't I Get Better?". It is an excellent source of information.

Read "Cure Unknown" by Pamela Weintraub. Get it at your local library or buy it used on Amazon.

View "Under Our Skin" for free on www.hulu.com

Btw - please break up your posts into 2-3 sentence paragraphs, as there are people on Lymenet who cannot read large blocks of text due to neurological problems from Lyme. To do this, click on the pencil/paper icon, make your changes, then click "Edit Post". Thanks.

Fyi - we correspond by "Private Messages (PMs), not e-mails. You should delete your email address, because Lymenet is a public forum with all sorts of people on it.

[ 06-29-2015, 05:03 PM: Message edited by: hopingandpraying ]
 


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