LymeNet Flash: Lymes Specialist Needed in MD

This is topic Lymes Specialist Needed in MD in forum Seeking a Doctor at LymeNet Flash.

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https://flash.lymenet.org/ubb/ultimatebb.php/topic/2/25906

Posted by LaurieZ (Member # 46158) on :

My 15yo son was diagnosed with Lymes disease just yesterday, he has been on doxy for 8 days because of the rash. His pediatrician has been proactive and wonderful but what complicates his treatment is that he has a preexisting auto immune disease, anklyling spondolysis since age 11 that he is treated for by every 6 week infusions of Remicade. I really feel like we need a true expert in both diseases

Posted by hopingandpraying (Member # 9256) on :

Welcome to Lymenet! PM sent for PA & MD.

Your dear son needs to be evaluated and treated by a Lyme-literate doctor (LLMD). Non LLMDs have no clue about this horrible disease or its complex treatment!

A LLMD is one who has treated Lyme disease and the co-infections which come with it for many years and has gotten patients well. A good one will follow Dr. B's Guidelines, the "gold standard" for Lyme treatment.

Here is a link for them:

http://www.lymenet.org/BurrGuide200810.pdf

Unfortunately, LLMDs are far and few between. You need to go where they are.

Also most LLMDs do not accept insurance due to the politics surrounding this horrible disease. Read poster TF's explanation, "Why Lyme Doctors Don't Take Insurance":

http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=2;t=025539;p=0

When calling for an appointment, ask if they have any cancellations or a waiting list. Patients have been able to get in sooner by doing this.

Check the online state Lyme groups at:
https://groups.yahoo.com/neo/groups/MarylandLyme/info

Maybe they can help.

Some more resources for you (including Support Groups info):
www.lyme-aware.org/maryland.html

http://www.lymenet.org/SupportGroups/UnitedStates/Maryland/

The top LLMD, Dr. H, has written a new book entitled, "Why Can't I Get Better?". It is an excellent source of information.

Read "Cure Unknown" by Pamela Weintraub. Get it at your local library or buy it used on Amazon.

View "Under Our Skin" for free on www.hulu.com

Posted by TF (Member # 14183) on :

Hi, neighbor. I sent you a name. Welcome to LymeNet! We will help you here all we can.