I am looking for a Lyme Literate Doc in Dallas/Fort Worth area. Please PM me!
Thanks!
Posted by me (Member # 45475) on :
Hi! I'm from TX and live in TX. Unfortunately, LLMDS are few and far between in TX, and the one I saw totally dropped the ball (Dr. S in Houston). I had to travel out of state and am seeing a wonderful doctor in MD.
I know this probably isn't what you want to hear, and I was devastated when I ran into this problem. I don't necessarily have the monetary means to travel to MD, but I decided I'd rather go in debt and have a chance at a healthy life than live in misery.
I see my doc in person every three months and he will do monthly follow ups via phone in between visits. If you have any friends who travel a lot and have tons of air miles, a couple of them might be willing to let you use some of them or they might let you use hotel points.
Contact TXLDA. They have a very short list of docs. I am happy to give you the name of my LLMD if you are interested. I've made progress since he's been treating me.
If you ever need to chat, vent, etc., I'm here. Best wishes to you.
Posted by hopingandpraying (Member # 9256) on :
Welcome to Lymenet! PM sent with some suggestions.
You need to be evaluated and treated by a Lyme-literate doctor (LLMD). Non LLMDs have no clue about this horrible disease or its complex treatment!
A LLMD is one who has treated Lyme disease and the co-infections which come with it for many years and has gotten patients well. A good one will follow Dr. B's Guidelines, the "gold standard" for Lyme treatment.
I don't know if you are able to travel, but please read the following about LLMDs and Texas which was recently posted about TX by Lymenet poster "TF":
"Texas is not a great place to find a good Lyme doctor. Texas threatens its Lyme doctors and gets them to move or stop practicing without notice.
Then, if they start up again a year or so later, they do it to them again. So, there really are few Lyme doctors there and no top notch ones.
Because of the sorry state of affairs in Texas, many folks from Texas are coming to the D.C. area for testing and treatment for Lyme disease and it's co-infections."
*H&P NOTE: I sent you his name and contact info.
"Everyone is very happy with him and he follows the Burrascano protocol. Burrascano was the Lyme Disease pioneer and the #1 Lyme doctor in the world before he retired a few years ago. Patients came from every country to be treated by him.
The doc I recommend can see you in a few days and I don't think you would regret it. After the first in person visit, you can do telephone or Skype appointments with him monthly. So, there would be little travel involved, only a few times per year.
At least half of all Lyme patients travel out of state for their care. The doc is the key to the diagnosis and for getting rid of this horrendous disease. I can't emphasize that enough-the doc is the key.
This is what I wrote to another Texan in Sept. Look at the following thread to see all of our discussion: