This is topic Seeking LLMD near Philadelphia Pennsylvania in forum Seeking a Doctor at LymeNet Flash.


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Posted by Lymedelphia (Member # 47393) on :
 
I'm 29. I was diagnosed with this wonderful disease back in 2008, about 5 months after my bite, and was given a months worth of doxycycline and sent on my way.

Having been relatively healthy all my life and knowing nothing about antibiotics, i didn't always take them twice a day, 12 hours apart, which I now know dramatically reduces their effectiveness.

I've been having chronic joint pain (shoulders, neck, ankles, knees) for the better part of a year, and i now suspect that LD is to blame. My "doctors" cant find anything wrong with me, and state that chronic LD is "too controversial" to treat, so i'd like to seek out an LLMD to confirm or deny the cause of my joint pain.

thanks in advance for your help!
 
Posted by hopingandpraying (Member # 9256) on :
 
Welcome to Lymenet! PM sent for PA & MD.

You need to be evaluated and treated by a Lyme-literate doctor (LLMD). Non LLMDs have no clue about this horrible disease or its complex treatment!

A LLMD is one who has treated Lyme disease and the co-infections which come with it for many years and has gotten patients well. A good one will follow Dr. B's Guidelines, the "gold standard" for Lyme treatment.

Here is a link for them:

http://www.lymenet.org/BurrGuide200810.pdf

Unfortunately, LLMDs are far and few between. You need to go where they are.

Also most LLMDs do not accept insurance due to the politics surrounding this horrible disease. Read poster TF's explanation, "Why Lyme Doctors Don't Take Insurance":

http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=2;t=025539;p=0

When calling for an appointment, ask if they have any cancellations or a waiting list. Patients have been able to get in sooner by doing this.

Check the online state Lyme groups at:
https://groups.yahoo.com/neo/groups/PennsylvaniaLyme/info

Maybe they can help.

Some more resources for you (including Support Groups info):
www.lyme-aware.org/pennsylvania.html
www.lymepa.org

http://www.lymenet.org/SupportGroups/UnitedStates/Pennsylvania/

The top LLMD, Dr. H, has written a book entitled, "Why Can't I Get Better?". It is an excellent source of information.

Read "Cure Unknown" by Pamela Weintraub. Get it at your local library or buy it used on Amazon.

View "Under Our Skin" for free on www.hulu.com
 


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