LymeNet Flash: NY (Buffalo) LLMD needed

This is topic NY (Buffalo) LLMD needed in forum Seeking a Doctor at LymeNet Flash.

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Posted by RedRosie (Member # 47466) on :

Hi

I am in the Buffalo, NY area. I am not opposed to Rochester, NY or someone in the WNY vicinity, in general.

Thank you for any help! And all you do for us.

Best,
RR

Posted by hopingandpraying (Member # 9256) on :

Welcome to Lymenet! PM sent for upstate NY & PA.

You need to be evaluated and treated by a Lyme-literate doctor (LLMD). Non LLMDs have no clue about this horrible disease or its complex treatment!

A LLMD is one who has treated Lyme disease and the co-infections which come with it for many years and has gotten patients well. A good one will follow Dr. B's Guidelines, the "gold standard" for Lyme treatment.

Here is a link for them:

http://www.lymenet.org/BurrGuide200810.pdf

Unfortunately, LLMDs are far and few between. You need to go where they are.

Also, most LLMDs do not take insurance due to the politics surrounding this disease. Read poster TF's explanation about this:

"Why Lyme Doctors Don't Take Insurance"
http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=2;t=025539;p=0

When calling for an appointment, ask if they have any cancellations or a waiting list. Patients have been able to get in sooner by doing this.

Check the online state Lyme groups at:
https://groups.yahoo.com/neo/groups/NewYorkLyme/info

Maybe they can help.

Some more resources for you (including Support Groups info):
http://whatislyme.com/websites-and-support-groups-by-state/
www.empirestatelymediseaseassociation.org

http://www.lymenet.org/SupportGroups/UnitedStates/NewYork/

Read the book written by Dr. H, the top Lyme-literate doctor, entitled, "Why Can't I Get Better?". It is an excellent source of information.

Also "Cure Unknown" by Pamela Weintraub. Check your local library or buy it used on Amazon.

View "Under Our Skin" for free on www.hulu.com

[ 03-14-2016, 02:40 PM: Message edited by: hopingandpraying ]

Posted by RedRosie (Member # 47466) on :

I decided to reach out to iGeneX and got a list of about 24 NYS Lyme Literate docs they work with regularly. I will start calling..

Dr.P is on there. But, still haven't gotten a glowing review.

Wonder if it is worth the chance of $$ spent. What if the bad review are true?

I keep butting my head on some of these groups-- some not very active, other the same info that is getting me nowhere...

Thanks for the time and info.