This is topic Seeking doctor in cenral MN in forum Seeking a Doctor at LymeNet Flash.


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Posted by VickiLynne (Member # 47473) on :
 
I'm in need of a LLMD, preferable one that is familiar with the Limerix vaccine (from 2000, and pulled from the market the same year) and it's possible long term side effects. Please help, I just had a doctor tell me today that I'm crazy!!
 
Posted by VickiLynne (Member # 47473) on :
 
Probably should have spell checked better, Lymerix vaccine is what I meant, and Central MN please.
 
Posted by hopingandpraying (Member # 9256) on :
 
Welcome to Lymenet! PM sent for MN.

You need to be evaluated and treated by a Lyme-literate doctor (LLMD). Non LLMDs have no clue about this horrible disease or its complex treatment!

A LLMD is one who has treated Lyme disease and the co-infections which come with it for many years and has gotten patients well. A good one will follow Dr. B's Guidelines, the "gold standard" for Lyme treatment.

Here is a link for them:

http://www.lymenet.org/BurrGuide200810.pdf

I would think a LLMD would be aware of and know about the Lymerix vaccine, etc.

Unfortunately, LLMDs are far and few between. You need to go where they are.

Also, most LLMDs do not accept insurance due to the politics surrounding this horrible disease. Read poster TF's explanation, "Why Lyme Doctors Don't Take Insurance":

http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=2;t=025539;p=0

When you call for an appointment, ask if they have any cancellations or a waiting list. Patients have been able to get in earlier by doing this.

Check the online state Lyme groups at:
https://groups.yahoo.com/neo/groups/MinnesotaLyme/info

Maybe they can help.

Some more resources for you:
http://whatislyme.com/websites-and-support-groups-by-state/
http://mnlyme.com

http://www.lymenet.org/SupportGroups/UnitedStates/Minnesota/

Dr. H, the top LLMD, has written a book entitled, "Why Can't I Get Better?". It is an excellent source of information.

Read "Cure Unknown" by Pamela Weintraub. Check the local library or buy it used on Amazon.

View "Under Our Skin" for free on www.hulu.com

[ 03-14-2016, 02:32 PM: Message edited by: hopingandpraying ]
 
Posted by Christianmotherof5 (Member # 47535) on :
 
Can you share this info with me as well. I am not far from MN and am looking for a LLMD. Thanks.
 
Posted by hopingandpraying (Member # 9256) on :
 
Christianmotherof5 - you should write a new post instead of adding on to an existing one, so more people will see it and respond because most don't re-read old posts.

OK, I see you have done that.

PM sent for MN & IA.
 


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