This is topic Seeking Lyme literate doc in Southern New Jersey in forum Seeking a Doctor at LymeNet Flash.


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Posted by Sunnysilver (Member # 47859) on :
 
Many thanks in advance for any help you might share. Went to an infectious disease doc today, who tells me I don't have Lyme based on second negative lab work results. I had Lyme back in the 1990's and I know the symptoms in my body. I had a great Lyme-literate doc who basically saved my life back then. He has closed his practice so now I need to find someone who really gets this!
I'm in Cape May, NJ and am willing to travel to someone who really understands Lyme. Thank you!
 
Posted by hopingandpraying (Member # 9256) on :
 
Welcome to Lymenet! PM sent for MD.

Stay away from Infectious Disease doctors. They think one dose of antibiotics is enough to treat Lyme and that chronic Lyme doesn't exist.

Read about the controversy regarding Lyme Disease and its treatment:

http://www.clinicaladvisor.com/features/controversy-continues-to-fuel-the-lyme-war/article/117160/

You need to be evaluated and treated by a Lyme-literate doctor (LLMD). Non LLMDs have no clue about this horrible disease or its complex treatment!

A LLMD is one who has treated Lyme disease and the co-infections which come with it for many years and has gotten patients well. A good one will follow Dr. B's Guidelines, the "gold standard" for Lyme treatment.

Here is a link for them:

http://www.lymenet.org/BurrGuide200810.pdf

LLMDs are far and few between, unfortunately. You need to go where they are.

Also, most LLMDs do not accept insurance due to the politics surrounding this horrible disease. Read poster TF's explanation, "Why Lyme Doctors Don't Take Insurance":
http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=2;t=025539;p=0

Check the online state Lyme groups at:
https://groups.yahoo.com/neo/groups/NewJerseyLyme/info

Maybe they can help.

Some more resources (including Support Groups info):
http://whatislyme.com/websites-and-support-groups-by-state/

http://www.lymenet.org/SupportGroups/UnitedStates/NewJersey/

The top LLMD, Dr. H, has written a book entitled, "Why Can't I Get Better?". It is an excellent source of information.

Read "Cure Unknown" by Pamela Weintraub. Get it at your local library or buy it used on Amazon.

View "Under Our Skin" for free on https://www.viewster.com/movie/1193-15367-000/under-our-skin/

Btw - you should break up your posts into 2-3 sentence paragraphs, as there are people on Lymenet who cannot read large blocks of text due to neurological problems from Lyme.

To do this, click on the pencil/paper icon, make your changes, then click "Edit Post". Thanks.
 
Posted by Sunnysilver (Member # 47859) on :
 
Thank you for all of this great information!
 


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