LymeNet Flash: Need help finding LLMD Upstate NY area... near Syracuse

This is topic Need help finding LLMD Upstate NY area... near Syracuse in forum Seeking a Doctor at LymeNet Flash.

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Posted by wendylee39 (Member # 48025) on :

Can any help me find a Dr near me. I am in Oneida, closer to Syracuse NY. zip cod 13421. I am sure I will have to travel

Thank you in advance
Wendy

Posted by hopingandpraying (Member # 9256) on :

Welcome to Lymenet! PM sent for upstate NY.

You need to be evaluated and treated by a Lyme-literate doctor (LLMD). Non LLMDs have no clue about this horrible disease or its complex treatment!

A LLMD is one who has treated Lyme disease and the co-infections which come with it for many years and has gotten patients well. A good one will follow Dr. B's Guidelines, the "gold standard" for Lyme treatment.

Here is a link for them:

http://www.lymenet.org/BurrGuide200810.pdf

Unfortunately, LLMDs are far and few between. You need to go where they are.

Also, most LLMDs do not take insurance due to the politics surrounding this disease. Read poster TF's explanation about this:

"Why Lyme Doctors Don't Take Insurance"
http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=2;t=025539;p=0

When calling for an appointment, ask if they have any cancellations or a waiting list. Patients have been able to get in sooner by doing this.

Check the online state Lyme groups at:
https://groups.yahoo.com/neo/groups/NewYorkLyme/info

Maybe they can help.

Some more resources for you (including Support Groups info):
http://whatislyme.com/websites-and-support-groups-by-state/
www.empirestatelymediseaseassociation.org

http://www.lymenet.org/SupportGroups/UnitedStates/NewYork/

Read the book written by Dr. H , the top LLMD, titled, "Why Can't I Get Better?". It is an excellent source of information.

Also "Cure Unknown" by Pamela Weintraub. Check your local library or buy it used on Amazon.

View "Under Our Skin" for free on https://www.viewster.com/movie/1193-15367-000/under-our-skin/

Posted by Tincup (Member # 5829) on :

Wendy,

You can go to www.MarylandLyme.org and look under doctor referrals. There is information on doctors in all 50 states- alternative and/or traditional- along with names and contact information.

You may also want to go to www.TreatTheBite.com where you'll find a one page print out with recommendations you can take to any doctor to be treated if you just got a tick bite.

If you'd like to have ticks tested for several diseases there is a FREE (saves hundreds of dollars) place to do it right now.

Here is the link to find out how.
https://sites.google.com/site/marylandlyme/ticks/free-tick-testing

Good luck!