LymeNet Flash: LONG ISLAND NY Doctor Needed

This is topic LONG ISLAND NY Doctor Needed in forum Seeking a Doctor at LymeNet Flash.

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Posted by hillarey (Member # 48058) on :

Looking for a LLMD in Long Island or NYC. My boyfriend has had symptoms for 20 years, but never diagnosed, may be late stage.

Posted by Tincup (Member # 5829) on :

Hillerey,

Welcome to LymeNet.

Sorry to hear about your boyfriends situation. If you go to this link and click on Doctor Referrals, you'll see some contact info for NY health care professionals treating Lyme.

https://sites.google.com/site/drjoneskids/home

Hope he is on the road to recovery soon!

Posted by hopingandpraying (Member # 9256) on :

Welcome to Lymenet! PM sent for CT.

Your boyfriend needs to be evaluated and treated by a Lyme-literate doctor (LLMD). Non LLMDs have no clue about this horrible disease or its complex treatment!

A LLMD is one who has treated Lyme disease and the co-infections which come with it for many years and has gotten patients well. A good one will follow Dr. B's Guidelines, the "gold standard" for Lyme treatment.

Here is a link for them:

http://www.lymenet.org/BurrGuide200810.pdf

LLMDs are far and few between, unfortunately. He needs to go where they are. I don't know of any on Long Island.

Also, most LLMDs do not accept insurance due to the politics surrounding this horrible disease. Read poster TF's explanation, "Why Lyme Doctors Don't Take Insurance":
http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=2;t=025539;p=0

When calling for an appointment, ask if they have any cancellations or a waiting list. Patients have been able to get in sooner by doing this.

Check the online state Lyme groups at:
https://groups.yahoo.com/neo/groups/NewYorkLyme/info

Maybe they can help.

Some more resources for you (including Support Groups info):
http://whatislyme.com/websites-and-support-groups-by-state/

www.empirestatelymediseaseassociation.org

http://www.lymenet.org/SupportGroups/UnitedStates/NewYork/

The top LLMD, Dr. H, has written a book entitled, "Why Can't I Get Better?". It is an excellent source of information.

Read "Cure Unknown" by Pamela Weintraub. Get it at your local library or buy it used on Amazon.

View "Under Our Skin" for free on https://www.viewster.com/movie/1193-15367-000/under-our-skin/