This is topic Syracuse, New York in forum Seeking a Doctor at LymeNet Flash.


To visit this topic, use this URL:
https://flash.lymenet.org/ubb/ultimatebb.php/topic/2/26993

Posted by Gmay (Member # 48078) on :
 
We are looking for a LLMD in the Syracuse, NY area. Next best locations are Rochester, Buffalo, Binghamton or Albany.

Thank you,
 
Posted by Tincup (Member # 5829) on :
 
G, I MAY give you some info, or G, I MAY not. And good morning to you Gmay! ~smile~

If you go to this site linked below- children with Lyme site- and check on the Doctor Referral page (menu on the left), you'll find a list of health care professionals, along with their town/state location and contact information.

https://sites.google.com/site/drjoneskids/home

Hope that helps in your search!
 
Posted by hopingandpraying (Member # 9256) on :
 
Welcome to Lymenet! PM sent for upstate NY.

You need to be evaluated and treated by a Lyme-literate doctor (LLMD). Non LLMDs have no clue about this horrible disease or its complex treatment!

A LLMD is one who has treated Lyme disease and the co-infections which come with it for many years and has gotten patients well. A good one will follow Dr. B's Guidelines, the "gold standard" for Lyme treatment.

Here is a link for them:

http://www.lymenet.org/BurrGuide200810.pdf

Unfortunately, LLMDs are far and few between. You need to go where they are.

Also, most LLMDs do not take insurance due to the politics surrounding this disease. Read poster TF's explanation about this:

"Why Lyme Doctors Don't Take Insurance"
http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=2;t=025539;p=0

When calling for an appointment, ask if they have any cancellations or a waiting list. Patients have been able to get in sooner by doing this.

Check the online state Lyme groups at:
https://groups.yahoo.com/neo/groups/NewYorkLyme/info

Maybe they can help.

Some more resources for you (including Support Groups info):
http://whatislyme.com/websites-and-support-groups-by-state/
www.empirestatelymediseaseassociation.org

http://www.lymenet.org/SupportGroups/UnitedStates/NewYork/

Read the book written by the top LLMD, Dr. H, titled, "Why Can't I Get Better?". It is an excellent source of information.

Also "Cure Unknown" by Pamela Weintraub. Check your local library or buy it used on Amazon.

View "Under Our Skin" for free on https://www.viewster.com/movie/1193-15367-000/under-our-skin/
 


Powered by UBB.classic™ 6.7.3