LymeNet Flash: NJ/Phila need dedicated LLMD to dismiss ALS diagnosis

This is topic NJ/Phila need dedicated LLMD to dismiss ALS diagnosis in forum Seeking a Doctor at LymeNet Flash.

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https://flash.lymenet.org/ubb/ultimatebb.php/topic/2/27139

Posted by Pancoast (Member # 48447) on :

We need a serious LLMD dr to work for my husband and dismiss an ALS diagnosis!

Posted by Lymetoo (Member # 743) on :

Sending info for PA ...

Here is reliable info on Lyme:

http://flash.lymenet.org/ubb/ultimatebb.php/topic/1/88555

Posted by Tincup (Member # 5829) on :

Pan coast,

Sorry to hear about your hubby's situation.

If you go to www.MarylandLyme.org you will see a doctor referral section on the menu to your left. That will give you contact information for traditional, natural and other kinds of health care providers from all states that have them.

Hope you find someone to help you and your loved one!

Posted by hopingandpraying (Member # 9256) on :

Welcome to Lymenet! PM sent for PA & MD.

Your husband needs to be evaluated and treated by a Lyme-literate doctor (LLMD). Non LLMDs have no clue about this horrible disease or its complex treatment!

A LLMD is one who has treated Lyme disease and the co-infections which come with it for many years and has gotten patients well. A good one will follow Dr. B's Guidelines, the "gold standard" for Lyme treatment.

Here is a link for them:

http://www.lymenet.org/BurrGuide200810.pdf

Unfortunately, LLMDs are far and few between. He needs to go where they are.

Also most LLMDs do not accept insurance due to the politics surrounding this horrible disease. Read poster TF's explanation, "Why Lyme Doctors Don't Take Insurance":

http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=2;t=025539;p=0

Check the online state Lyme groups at:
https://groups.yahoo.com/neo/groups/NewJerseyLyme/info

Maybe they can help.

Some more resources (including Support Groups info):
http://whatislyme.com/websites-and-support-groups-by-state/

http://www.lymenet.org/SupportGroups/UnitedStates/NewJersey/

The top LLMD, Dr. H, has written a book entitled, "Why Can't I Get Better?". It is an excellent source of information.

Read "Cure Unknown" by Pamela Weintraub. Get it at your local library or buy it used on Amazon.

View "Under Our Skin" for free on http://www.veoh.com/m/watch.php?v=v21055812yWtmpgB8

Some links about ALS & Lyme:

https://www.lymedisease.org/lymepolicywonk-lyme-neurologic-misdiagnosis/

https://sites.google.com/site/floridalyme/lyme-misdiagnosed-as/als--lou-gehrigs

https://www.lymedisease.org/372/

[ 07-25-2016, 04:44 PM: Message edited by: hopingandpraying ]

Posted by Robin123 (Member # 9197) on :

There's a Dr M in Colorado who found out his ALS was Lyme disease, he treated, and he's better - pming you -