This is topic PENNSYLVANIA -Philadelphia area. Need Lyme Specialist for 14, 1, 7 & 5 year old in forum Seeking a Doctor at LymeNet Flash.


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Posted by Sasquatchio (Member # 48629) on :
 
Looking for a Lyme literate doctor for my kids. Our pediatrician refuses to give treatment. Also, hoping to find a doctor that takes our insurance Highmark Blue Shield PPO.

Thank you in advance.
 
Posted by Tincup (Member # 5829) on :
 
So sorry you've got a boat full of children that need help and a doctor that won't help. UGGGG!

If recently bitten...

www.TreatTheBite.com

Might want to try printing out the one page treatment guidelines from the site above and taking them with you to a local doctor.

If they see them, and they know YOU know, they are more likely to treat. And it would be easier to find a local doctor that takes insurance than a Lyme doctor that would (few do), and/or a Lyme doctor that sees children and takes insurance.

If you need anything further....

If you go to www.VirginiaLyme.org you will see a "doctor referral" page on the menu to your left.

There you can find names and contact information on Lyme treating professionals in all states that have them.

Good luck to you and yours!
 
Posted by hopingandpraying (Member # 9256) on :
 
Welcome to Lymenet! PM sent for PA.

Your children need to be evaluated and treated by a Lyme-literate doctor (LLMD). Non LLMDs have no clue about this horrible disease or its complex treatment!

A LLMD is one who has treated Lyme disease and the co-infections which come with it for many years and has gotten patients well. A good one will follow Dr. B's Guidelines, the "gold standard" for Lyme treatment.

Here is a link for them:

http://www.lymenet.org/BurrGuide200810.pdf

Unfortunately, LLMDs are far and few between. Your children need to go where they are.

Also most LLMDs do not accept insurance due to the politics surrounding this horrible disease. Read poster TF's explanation, "Why Lyme Doctors Don't Take Insurance":

http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=2;t=025539;p=0

When calling for an appointment, ask if they have any cancellations or a waiting list. Patients have been able to get in sooner by doing this.

Check the online state Lyme groups at:
https://groups.yahoo.com/neo/groups/PennsylvaniaLyme/info

Maybe they can help.

Some more resources for you (including Support Groups info):
http://whatislyme.com/websites-and-support-groups-by-state/

www.lymepa.org [Note: they are very knowledgeable]

http://www.lymenet.org/SupportGroups/UnitedStates/Pennsylvania/

Here are a couple of links about Lyme and children with very good information:

http://www.childrenslymenetwork.org/

https://sites.google.com/site/drjoneskids/home

Links about teenagers and Lyme Disease:
https://www.lymedisease.org/45/

http://www.livingwithlymedisease.org/teenagers-with-lyme-disease.html

http://www.lymefight.info/lyme-disease-general-information/children-teens-and-lyme-disease/

The top LLMD, Dr. H, has written a book entitled, "Why Can't I Get Better?". It is an excellent source of information.

Read "Cure Unknown" by Pamela Weintraub. Get it at your local library or buy it used on Amazon.

View "Under Our Skin" for free on http://www.veoh.com/m/watch.php?v=v21055812yWtmpgB8
 


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