LymeNet Flash: Seeking LLMD in or near PA for 11 year old

This is topic Seeking LLMD in or near PA for 11 year old in forum Seeking a Doctor at LymeNet Flash.

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Posted by lcook100 (Member # 48630) on :

Hi - We believe my 11 year old son has Lyme. Our Dr has ordered a blood test (results aren't back yet) and started him on Amoxycillan (spell?) 500 mg 3 times a day.

Our Dr is not an expert and we want an expert. We live in central PA, but will drive.

Thanks!
- L

[ 08-24-2016, 03:32 PM: Message edited by: lcook100 ]

Posted by hopingandpraying (Member # 9256) on :

Welcome to Lymenet! PM sent for PA & MD.

Your dear son needs to be evaluated and treated by a Lyme-literate doctor (LLMD). Non LLMDs have no clue about this horrible disease or its complex treatment!

A LLMD is one who has treated Lyme disease and the co-infections which come with it for many years and has gotten patients well. A good one will follow Dr. B's Guidelines, the "gold standard" for Lyme treatment.

Here is a link for them:

http://www.lymenet.org/BurrGuide200810.pdf

Unfortunately, LLMDs are far and few between. He needs to go where they are.

Also most LLMDs do not accept insurance due to the politics surrounding this horrible disease. Read poster TF's explanation, "Why Lyme Doctors Don't Take Insurance":

http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=2;t=025539;p=0

When calling for an appointment, ask if they have any cancellations or a waiting list. Patients have been able to get in sooner by doing this.

Check the online state Lyme groups at:
https://groups.yahoo.com/neo/groups/PennsylvaniaLyme/info

Maybe they can help.

Some more resources for you (including Support Groups info):
http://whatislyme.com/websites-and-support-groups-by-state/

www.lymepa.org

http://www.lymenet.org/SupportGroups/UnitedStates/Pennsylvania/

Here are a couple of links about Lyme and children with very good information:

http://www.childrenslymenetwork.org/

https://sites.google.com/site/drjoneskids/home

The top LLMD, Dr. H, has written a book entitled, "Why Can't I Get Better?". It is an excellent source of information.

Read "Cure Unknown" by Pamela Weintraub. Get it at your local library or buy it used on Amazon.

View "Under Our Skin" for free on http://www.veoh.com/m/watch.php?v=v21055812yWtmpgB8

Btw - you should not use your real name, because this is a public forum with all sorts of people on it. Read this link about it:

http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=2;t=011844;p=0

You would have to contact the moderators to ask how to change your username.

Posted by JD112 (Member # 43247) on :

pm sent.