This is topic Doctor in NYC area? in forum Seeking a Doctor at LymeNet Flash.


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Posted by evodevo (Member # 46642) on :
 
I live in the Hudson Valley and I am looking for an LLMD. I have tried Dr H in NY but I cannot get phones answered.
I am used to going into the city. I would like to know if there are any recommended LLMDs in NYC that treat long term lyme I contracted a little over a year ago.
Midtown area is preferable.
Two tick bites in May and June of 2015. Treated with doxy for 6 weeks. I have crazy immune symptoms and joint pain. High RA, Igg 30 and 41.
My PCP is in a state of denial.
Thank you

[ 08-28-2016, 08:03 PM: Message edited by: faithful777 ]
 
Posted by hopingandpraying (Member # 9256) on :
 
Welcome to Lymenet! PM sent for CT & upstate NY.

You need to be evaluated and treated by a Lyme-literate doctor (LLMD). Non LLMDs have no clue about this horrible disease or its complex treatment!

A LLMD is one who has treated Lyme disease and the co-infections which come with it for many years and has gotten patients well. A good one will follow Dr. B's Guidelines, the "gold standard" for Lyme treatment.

Here is a link for them:

http://www.lymenet.org/BurrGuide200810.pdf

LLMDs are far and few between, unfortunately. You need to go where they are.

Also, most LLMDs do not accept insurance due to the politics surrounding this horrible disease. Read poster TF's explanation, "Why Lyme Doctors Don't Take Insurance":
http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=2;t=025539;p=0

When calling for an appointment, ask if they have any cancellations or a waiting list. Patients have been able to get in sooner by doing this.

Check the online state Lyme groups at:
https://groups.yahoo.com/neo/groups/NewYorkLyme/info

Maybe they can help.

Some more resources for you (including Support Groups info):
http://whatislyme.com/websites-and-support-groups-by-state/
www.empirestatelymediseaseassociation.org

http://www.lymenet.org/SupportGroups/UnitedStates/NewYork/

The top LLMD, Dr. H has written a book entitled, "Why Can't I Get Better?". It is an excellent source of information.

Read "Cure Unknown" by Pamela Weintraub. Get it at your local library or buy it used on Amazon.

View "Under Our Skin" for free on https://www.viewster.com/movie/1193-15367-000/under-our-skin/

Btw - I know you are new to Lymenet, but please break up your posts into 2-3 sentence paragraphs, as there are people on Lymenet who cannot read large blocks of text due to neurological problems from Lyme.

To do this click the pencil/paper icon, make your changes, then click "Edit Post". Thanks.
 
Posted by TF (Member # 14183) on :
 
There is nobody in NYC that I recommend. See this very recent thread about NYC lyme docs.

http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=2;t=027208;p=0
 


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