I suspect that I may have 'chronic Lyme Disease', and need a doctor, preferably near Central Virginia, that is either ILADS trained or is familiar with conducting blood tests using labs like IGENEX.
Posted by me (Member # 45475) on :
Sent you a private message with a recommendation for a LLMD. Best.
Posted by hopingandpraying (Member # 9256) on :
Welcome to Lymenet! PM sent for VA & MD.
You need to be evaluated and treated by a Lyme-literate doctor (LLMD). Non LLMDs have no clue about this horrible disease or its complex treatment!
A LLMD is one who has treated Lyme disease and the co-infections which come with it for many years and has gotten patients well. A good one will follow Dr. B's Guidelines, the "gold standard" for Lyme treatment.
Unfortunately, LLMDs are far and few between. You need to go where they are.
Also most LLMDs do not accept insurance due to the politics surrounding this horrible disease. Read poster TF's explanation, "Why Lyme Doctors Don't Take Insurance":
If you go to www.VirginiaLyme.org and look at the menu on your left you will see DOCTOR REFERRALS.
You can find Lyme treating health care professionals there, listed by state and country. It also has links to help find alternative doctors, chiropractors, specialists in Morgellons and MTHFR.
The Lyme Doc site also has a listing for good labs (including IGeneX), links to find a naturopathic doctor, acupuncture and oriental medicine doctors too.
Holistic dentists, experts in mold, and even places to avoid are listed there.
Here is a "Help For You" page that can help with the cost of labs, provide free or reduced priced medications, grants to assist those under 25 with Lyme related costs, free cell phones and more.