I have been to two Doctors already and to NO AVAIL! They just say to keep taking Doxy & treat symptoms as I get worse! Please Help!
Posted by hopingandpraying (Member # 9256) on :
Welcome to Lymenet! PM sent for FL & VA.
You need to be evaluated and treated by a Lyme-literate doctor (LLMD). Non LLMDs have no clue about this horrible disease or its complex treatment!
A LLMD is one who has treated Lyme disease and the co-infections which come with it for many years and has gotten patients well. A good one will follow Dr. B's Guidelines, the "gold standard" for Lyme treatment.
Unfortunately, LLMDs are far and few between, so you need to go where they are. At least half of all Lyme patients travel out-of-state for treatment. None in SC.
Also, most LLMDs do not accept insurance due to the politics surrounding this horrible disease. Read poster TF's explanation, "Why Lyme Doctors Don't Take Insurance":
Read the books written by the top LLMD, Dr. H, titled, "Why Can't I Get Better?" and "How Can I Get Better?". They are an excellent source of information.
Also read "Cure Unknown" by Pamela Weintraub. Check your local library or buy it used on Amazon.
I pm'd you SC girl! I am one of those myself- and geesh- not the place you want to be to treat lyme. Good news is- if you are willing to travel, great help is available! Take care!
Posted by TF (Member # 14183) on :
Once you go south of Washington, D.C. there really are no good lyme doctors.
If you are willing to travel once every 3 months to the D.C. area for good care, let me know and I will send you the doctor's name and lots of info. People come to him from Florida, Texas, New Mexico, Canada, Ohio, etc.