This is topic Florida LLMD Needed in forum Seeking a Doctor at LymeNet Flash.


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Posted by cosine4 (Member # 50095) on :
 
I recently had to move to Florida for work and am need of finding a local LLMD.

Me:
40 Year old male. I have had better luck with female doctors (understanding/listening) but am open to the best treatment options.

Preferred City:
Sarasota/Bradenton (Tampa or St. Petersburg will work too for the right treatment)

Lyme History:
Infected May 2001
Diagnosed and began treatment November 2012
Since treatment began my CD57 has never gotten above 50, currently at 20.

Thank you for all you do here!
 
Posted by hopingandpraying (Member # 9256) on :
 
Welcome to Lymenet! PM sent for FL.

You need to be evaluated and treated by a Lyme-literate doctor (LLMD). Non LLMDs have no clue about this horrible disease or its complex treatment!

A LLMD is one who has treated Lyme disease and the co-infections which come with it for many years and has gotten patients well. A good one will follow Dr. B's Guidelines, the "gold standard" for Lyme treatment.

Here is a link for them:

http://www.lymenet.org/BurrGuide200810.pdf

Unfortunately, LLMDs are far and few between. You need to go where they are. There was a good one in Tampa, but he retired.

Also most LLMDs do not accept insurance due to the politics surrounding this horrible disease. Read poster TF's explanation, "Why Lyme Doctors Don't Take Insurance":

http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=2;t=025539;p=0

Check the online state Lyme groups at:
https://groups.yahoo.com/neo/groups/FloridaLyme/info

Maybe they can help.

Some more resources (including Support Groups):
http://whatislyme.com/websites-and-support-groups-by-state/

http://www.lymenet.org/SupportGroups/UnitedStates/Florida/

Read the books written by the top LLMD, Dr. H, titled, "Why Can't I Get Better?" and his new one, "How Can I Get Better?". They are an excellent source of information.

Read "Cure Unknown" by Pamela Weintraub. Get it at your local library or buy it used on Amazon.

View "Under Our Skin" for free on http://www.veoh.com/m/watch.php?v=v21055812yWtmpgB8
 
Posted by TF (Member # 14183) on :
 
Sorry to tell you but I do not believe there are any good lyme doctors in Florida now that Dr. C has retired.

I tell all Florida people to travel north to the D.C. area to get good care.

You are in a bad state for a lyme patient. The doctors in Florida say there is no lyme here! And they don't care that you came from up north!

So, contact all the Florida lyme support groups (see Support Groups on the left side of the page) and see where their folks are going for good care.

If you don't mind coming up north once every 3 months, I can give you a name of a good doctor with no wait. Let me know.
 


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