This is topic Seeking great Lyme docs in Washington D.C and in Texas in forum Seeking a Doctor at LymeNet Flash.


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Posted by Halftime (Member # 50312) on :
 
...especially if there is someone in TX who is a really great diagnostician. (Dallas area would be fantastic!)
 
Posted by hopingandpraying (Member # 9256) on :
 
Welcome to Lymenet! PM sent for TX & DC.

You need to be evaluated and treated by a Lyme-literate doctor (LLMD). Non LLMDs have no clue about this horrible disease or its complex treatment!

A LLMD is one who has treated Lyme disease and the co-infections which come with it for many years and has gotten patients well. A good one will follow Dr. B's Guidelines, the "gold standard" for Lyme treatment.

Here is a link for them:

http://www.lymenet.org/BurrGuide200810.pdf

LLMDs are far and few between, unfortunately. You need to go where they are. At least half of all Lyme patients travel out-of-state for their care.

Also, most LLMDs do not accept insurance due to the politics surrounding this horrible disease. Read poster TF's explanation, "Why Lyme Doctors Don't Take Insurance":
http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=2;t=025539;p=0

When calling for an appointment, ask if they have any cancellations or a waiting list (call every day if you have too!). Patients have been able to get in sooner by doing this.

Please read the following about LLMDs and Texas which was posted about TX:

"Texas is not a great place to find a good Lyme doctor. Texas threatens its Lyme doctors and gets them to move or stop practicing without notice.

Then, if they start up again a year or so later, they do it to them again. So, there really are few Lyme doctors there and no top notch ones."

Check the online state Lyme groups at:
https://groups.yahoo.com/neo/groups/TexasLyme/info

Maybe they can help.

Some more resources for you (including Support Groups info):
http://whatislyme.com/websites-and-support-groups-by-state/

www.txlda.org

www.natcaplyme.org

http://www.lymenet.org/SupportGroups/UnitedStates/Texas/

Read the books written by the top LLMD, Dr. H, titled, "Why Can't I Get Better?" and his new one, "How Can I Get Better?". They are an excellent source of information.

Also read "Cure Unknown" by Pamela Weintraub. Get it at your local library or buy it used on Amazon.

View "Under Our Skin" for free on http://www.veoh.com/m/watch.php?v=v21055812yWtmpgB8
 
Posted by TF (Member # 14183) on :
 
I sent you names as requested.
 
Posted by Tincup (Member # 5829) on :
 
I am sharing below a large list of Lyme treating health care professionals names and contact info for you to consider.

Narrowing down your choices by contacting their offices and reading their websites in advance may help pick someone more in line with your needs.

Some do take insurance and some charge MUCH less than others and it has nothing to do with their abilities.

If you go to www.MarylandLyme.org and look at the menu to your left you will see "DOCTOR REFERRALS".

Click there to find the names and contact information for health care professionals treating Lyme & TBD's in your state (or any state). You may want to review options in states near-by also.

There is also a page with support group information, one for alternative medical professionals, educational conferences across the country, labs and their contact information, one for mental health providers, MTHFR and Morgellons providers.

There is also a list of TBD with how to diagnose (testing), a list of symptoms for each disease and treatment info with links to the treatment guidelines.

Here is a "Help For You" page that hopefully you can find some cost-saving tips to help you out, if needed.

https://sites.google.com/site/marylandlyme/help-for-you

Hope that helps in your search!

Good luck!
 


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