This is topic Seeking a LLMD in Boston, MA in forum Seeking a Doctor at LymeNet Flash. To visit this topic, use this URL: https://flash.lymenet.org/ubb/ultimatebb.php/topic/2/27914 Posted by jessesys (Member # 50353) on : 05-23-2017 03:50 PM
Hello! I have chronic lyme and need to find a lyme literate doctor in Boston or Massachusetts (or surrounding states). Any help is so appreciated! Warmly, Jesse
Posted by hopingandpraying (Member # 9256) on : 05-23-2017 09:09 PM
Welcome to Lymenet! PM sent for MA & CT. You need to be evaluated and treated by a Lyme-literate doctor (LLMD). Non LLMDs have no clue about this horrible disease or its complex treatment! A LLMD is one who has treated Lyme disease and the co-infections which come with it for many years and has gotten patients well. A good one will follow Dr. B's Guidelines, the "gold standard" for Lyme treatment. Here is a link for them: http://www.lymenet.org/BurrGuide200810.pdf Unfortunately, LLMDs are far and few between. You need to go where they are. Also most LLMDs do not accept insurance due to the politics surrounding this horrible disease. Read poster TF's explanation, "Why Lyme Doctors Don't Take Insurance": http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=2;t=025539;p=0 When calling for an appointment, ask if they have any cancellations or a waiting list. Patients have been able to get in sooner by doing this. Check the online state Lyme groups at: https://groups.yahoo.com/neo/groups/MassachusettsLyme/info Maybe they can help. Some more resources for you (including Support Groups info): http://whatislyme.com/websites-and-support-groups-by-state/ http://www.lymenet.org/SupportGroups/UnitedStates/Massachusetts/ Read the books written by the top LLMD, Dr. H, titled, "Why Can't I Get Better?" and his new one, "How Can I Get Better". They are an excellent source of information. Also read "Cure Unknown" by Pamela Weintraub. Get it at your local library or buy it used on Amazon. View "Under Our Skin" for free on http://www.veoh.com/m/watch.php?v=v21055812yWtmpgB8
Posted by Nancy2 (Member # 95) on : 05-24-2017 12:20 AM
Posted by KB69 (Member # 50475) on : 05-28-2017 04:24 PM
Hi Hoping and Praying, could you please send me the same information re: LLMDs in MA and CT? Thanks so much.
Posted by Nancy2 (Member # 95) on : 05-28-2017 09:30 PM
PM sent to KB69!
Posted by hopingandpraying (Member # 9256) on : 05-28-2017 10:24 PM
KB69 - Welcome to Lymenet! You should write a new post instead of adding on to an existing one, because most people don't re-read old posts. That way, more will see it and respond. PM sent for MA & CT. Btw - I know you are new to Lymenet, but you should not use your real name, because this is a public forum with all sorts of people on it. Read this link about it: http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=2;t=011844;p=0 To remove your name from the signature line, click on "Edit Profile" under Lymenet Flash in the top middle section of the Lymenet page. Click on "Edit Profile" on the left-hand side, scroll down to "Profile Fields" then down to "Signature". Make your changes, then click "Update Profile".
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