We're a Brooklyn family fighting Lyme for over a year (our sick girl is 7 years old). Lately we're experiencing regression and find our doctor in CT to be tough to interact with. We're looking for experts in NY area that combine ABX and herbs/oils. Would love to get recommendations.
Many thanks for your help!
Posted by hopingandpraying (Member # 9256) on :
Welcome to Lymenet! PM sent for CT.
Your daughter needs to be evaluated and treated by a Lyme-literate doctor (LLMD). Non LLMDs have no clue about this horrible disease or its complex treatment!
A LLMD is one who has treated Lyme disease and the co-infections which come with it for many years and has gotten patients well. A good one will follow Dr. B's Guidelines, the "gold standard" for Lyme treatment.
Read the books written by the top LLMD, Dr. H titled, "Why Can't I Get Better?" and his new one, "How Can I Get Better?". They are an excellent source of information.
Read "Cure Unknown" by Pamela Weintraub. Get it at your local library or buy it used on Amazon.
They could help you a lot to talk about your specific situation and make recommendations for doctors. Also, they're great support going forward. They, as well as the NY Lyme Support Group, have an online forum, after you have gone to one in-person meeting (that's true for the NYC group).
Posted by TF (Member # 14183) on :
I sent you some names and info.
Welcome to LymeNet! The great people here will help you all we can!
Posted by Tincup (Member # 5829) on :
Hey Brooklyn!
Sorry to hear about your family's illness and especially your little girl being so sick. For her I would recommend Dr. Charles R. Jones in CT. He is the best.
If you go to www.MarylandLyme.org and look at the menu to your left you will see "DOCTOR REFERRALS".
Click there to find the names and contact information for health care professionals treating Lyme & TBD's in your state (or any state).
There is also a page with support group information, one for alternative medical professionals, educational conferences across the country, labs and their contact information, one for mental health providers, MTHFR and Morgellons providers.
There is also a list of TBD with how to diagnose (testing), a list of symptoms for each disease and treatment info with links to the treatment guidelines.
Hope that helps! Good luck!
PS- They may edit my post because I used Dr. Jone's name. If they do, look under CT on the Lyme site I suggested and find him.