LymeNet Flash: Seeking Pediatric LLMD North Texas Area

This is topic Seeking Pediatric LLMD North Texas Area in forum Seeking a Doctor at LymeNet Flash.

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Posted by lymemom1221 (Member # 50559) on :

My two children were diagnosed with congenital Lyme by my LLMD. My LLMD does not treat children. Looking for pediatric LLMD in North Texas area. Natural/herbal approach preferred, but not necessary.

Posted by hopingandpraying (Member # 9256) on :

Welcome to Lymenet! PM sent for TX & MO.

Your children need to be evaluated and treated by a Lyme-literate doctor (LLMD). Non LLMDs have no clue about this horrible disease or its complex treatment!

A LLMD is one who has treated Lyme disease and the co-infections which come with it for many years and has gotten patients well. A good one will follow Dr. B's Guidelines, the "gold standard" for Lyme treatment.

Here is a link for them:

http://www.lymenet.org/BurrGuide200810.pdf

LLMDs are far and few between, unfortunately. You need to go where they are. At least half of all Lyme patients travel out-of-state for their care.

Also, most LLMDs do not accept insurance due to the politics surrounding this horrible disease. Read poster TF's explanation, "Why Lyme Doctors Don't Take Insurance":
http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=2;t=025539;p=0

When calling for an appointment, ask if they have any cancellations or a waiting list. Patients have been able to get in sooner by doing this.

Please read the following about LLMDs and Texas which was posted about TX:

"Texas is not a great place to find a good Lyme doctor. Texas threatens its Lyme doctors and gets them to move or stop practicing without notice.

Then, if they start up again a year or so later, they do it to them again. So, there really are few Lyme doctors there and no top notch ones."

Check the online state Lyme groups at:
https://groups.yahoo.com/neo/groups/TexasLyme/info

Maybe they can help.

Some more resources for you (including Support Groups info):
http://whatislyme.com/websites-and-support-groups-by-state/

www.txlda.org

http://www.lymenet.org/SupportGroups/UnitedStates/Texas/

Here are some links for you with good information about Lyme and children:

http://www.childrenslymenetwork.org/

https://sites.google.com/site/drjoneskids/symptoms-literature

https://sites.google.com/site/drjoneskids/home

Here is a link for a book titled, "When Your Child Has Lyme Disease: A Parent's Survival Guide" which also might be helpful:

http://www.lymeliteratepress.com/

Read the books written by the top LLMD, Dr. H, titled, "Why Can't I Get Better?" and his new one, "How Can I Get Better?". They are an excellent source of information.

Also read "Cure Unknown" by Pamela Weintraub. Get it at your local library or buy it used on Amazon.

View "Under Our Skin" for free on http://www.veoh.com/m/watch.php?v=v21055812yWtmpgB8

Posted by lymemom1221 (Member # 50559) on :

Hi there thanks for your response.

I am actually seeing an LLMD myself and he is the one that ran the CD57 panels on both my children. At our last consult, he said that he doesn't treat children under 13. He referred me to two natural LLMDs in the Austin area, but I was looking to see if there might be anyone closer. We will probably travel to Austin. I am trying to heal them naturally instead of with antibiotic therapies if at all possible as a first course of treatment.

Thanks for the links too, I have read a few of these but not all.

Posted by hopingandpraying (Member # 9256) on :

You're very welcome - glad to help.

Contact the TX Lyme Support Groups I gave you - they would know better about TX.

Btw - I know you are new to Lymenet, but please break up your posts into 2-3 sentence paragraphs, as there are people on Lymenet who cannot read large blocks of text due to neurological problems from Lyme.

To do this click the pencil/paper icon, make your changes, then click "Edit Post". Thanks.

Posted by momintexas (Member # 23391) on :

PM sent