This is topic Seeking Lyme-literate doctor in the Pittsburgh, PA area. in forum Seeking a Doctor at LymeNet Flash.


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Posted by peto (Member # 14092) on :
 
Looking for a really experienced and reputable lyme-literate MD for my brother, who has been diagnosed with Parkinson's disease.

Thanks for any help!
Tina
 
Posted by TF (Member # 14183) on :
 
I don't know of any highly rated lyme specialists in the Pittsburgh area. (It is my home town.) I know who they have there. Based on that, I have been recommending that folks there come to the D.C. area for their lyme treatment. We have much better lyme doctors here.

There is a really top notch lyme specialist who has been closed to new patients for nearly 3 years but has now reopened her practice to new people.

I highly recommend he go to her. She only requires an in-person visit once every 6 months. She will do telephone appointments the other months. So, that is not much travel at all.

It's not a bad drive to D.C. from the burgh.

Let me know if you want the name and prices, wait time, etc. This is a great opportunity to see a great doctor.

My husband was recently diagnosed with Parkinson's. It would be great if your brother's case was actually due to lyme disease.
 
Posted by peto (Member # 14092) on :
 
Thank you for your reply!
Yes, I would like the name, prices and other relevant info.

Tina
 
Posted by TF (Member # 14183) on :
 
I sent you the name.
 
Posted by Tincup (Member # 5829) on :
 
Welcome to LymeNet!

Please go to www.MarylandLyme.org and look at the menu to your left you will see "DOCTOR REFERRALS".

Click there to find the names and contact information for health care professionals in many fields who are treating Lyme & TBD's in all of the states.

Here are some ways to locate alternative health care professionals too.

https://sites.google.com/site/lymedoctors/alternative

Good luck to you and your brother!
 
Posted by hopingandpraying (Member # 9256) on :
 
Welcome to Lymenet! PM sent for PA, OH, MD, & DC.

Your brother needs to be evaluated and treated by a Lyme-literate doctor (LLMD). Non LLMDs have no clue about this horrible disease or its complex treatment!

A LLMD is one who has treated Lyme disease and the co-infections which come with it for many years and has gotten patients well. A good one will follow Dr. B's Guidelines, the "gold standard" for Lyme treatment.

Here is a link for them:

http://www.lymenet.org/BurrGuide200810.pdf

Unfortunately, LLMDs are far and few between. He needs to go where they are. At least half of all Lyme patients go out-of-state for care.

Also most LLMDs do not accept insurance due to the politics surrounding this horrible disease. Read poster TF's explanation, "Why Lyme Doctors Don't Take Insurance":

http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=2;t=025539;p=0

When calling for an appointment, ask if they have any cancellations or a waiting list. Patients have been able to get in sooner by doing this.

Check the online state Lyme groups at:
https://groups.yahoo.com/neo/groups/PennsylvaniaLyme/info

Maybe they can help. They would know better about PA.

Some more resources (including Support Groups info):
www.lymepa.org

http://whatislyme.com/websites-and-support-groups-by-state/

http://www.lymenet.org/SupportGroups/UnitedStates/Pennsylvania/

Read the books written by the top LLMD, Dr. H, titled, "Why Can't I Get Better?" and his new one, "How Can I Get Better". They are an excellent source of information.

Also read "Cure Unknown" by Pamela Weintraub. Get it at your local library or buy it used on Amazon.

View "Under Our Skin" for free on http://www.veoh.com/m/watch.php?v=v21055812yWtmpgB8
 


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