I have just been diagnosed with Lyme disease.. I have been reading about the disease and there seems to be so much controversy on what steps I need to take... If you could please help I would greatly appreciate it...
Thank you in advance,
Robin
Posted by hopingandpraying (Member # 9256) on :
Welcome to Lymenet! PM sent for FL, MD, & DC.
Praying you and everyone in FL are safe.
I don't know of any Lyme doctors in Palm Beach.
You need to be evaluated and treated by a Lyme-literate doctor (LLMD). Non LLMDs have no clue about this horrible disease or its complex treatment!
A LLMD is one who has treated Lyme disease and the co-infections which come with it for many years and has gotten patients well. A good one will follow Dr. B's Guidelines, the "gold standard" for Lyme treatment.
Unfortunately, LLMDs are far and few between so you need to go where they are. At least half of all Lyme patients travel out-of-state for their care.
Also, most LLMDs do not accept insurance due to the politics surrounding this horrible disease. Read poster TF's explanation, "Why Lyme Doctors Don't Take Insurance":
Read the books written by the top LLMD, Dr. H titled, "Why Can't I Get Better?" and his new one, "How Can I Get Better?". It is an excellent source of information.
Also read "Cure Unknown" by Pamela Weintraub. Check your local library or buy it used on Amazon.
It's amazing to see you on here today because I thought power was knocked out where you are!
Posted by Robincav (Member # 50828) on :
We have power just lots of clean up going forward...
Thank you all for your response 😊 Since being told I have Lyme Disease I have been extremely worried and want to make sure I take the wright steps to be symptom free...
I don't know when I had contracted this disease my only memory is when I was in high school 20 some years ago when I found a tick in my head... I did not experience any symptoms however about 4 years after I started to experience Brain fog, off balance, extreme panic attacks...
Again did not relate these symptoms to anything until possibly now... And even now I have doubt that this is what it could be.... If I said I wasn't scared I would be lying..
Kind of feeling alone in this ... So sorry for this just want to feel like myself again and don't know how to get there....
Thank you again for listening to me...
I do have family in NJ that I could stay with if there is a LLMD that you could recommend...
Thank you all again😊
(breaking up the post for easier reading for many here)
[ 09-11-2017, 11:40 PM: Message edited by: Robin123 ]
Posted by Robin123 (Member # 9197) on :
Hi - this section is for doctor referrals - I suggest you post about you and your history and symptoms in the Medical Questions section. We can discuss it all with you. Word to you here - your symptoms sound like Lyme.
Also, if you could post text between 1-3 lines, it's easier reading for many here with neurolyme challenges.