I'm looking for a doctor who can help me with testing, diagnosis and treatment, I'm willing to travel. There are ticks in my area, I've had to pull a few off my dogs and one of them contracted Lyme disease.
I've had multiple 'Lyme-like' symptoms for 5 years and now have developed severe idiopathic gastroparesis on top of this, (stomach paralysis, neurological). I've lost 40 pounds in 1 1/2 years because I vomit up most foods, and I'm getting scared.
I've been on meds for 5 years now which aren't treating the joint pain, fatigue, dizziness etc., just masking, and my dr. is unwilling to help further ( gastroparesis is being looked after by a gastroenterologist). I had to drop to part-time work, too.
Any help and advice would be appreciated! I'm new to striking out on my own like this, have always relied on my dr to help me but I'm at a dead end and getting worse. Thank you!
Posted by Bartenderbonnie (Member # 49177) on :
Welcome to lymenet saintsgomarchingin
You're in a tough spot. Canada notoriously hostile to doctors who treat Lyme disease.
I suggest you join the Ontario Lyme support group. They will have many recourses for you in finding a N.D. in Canada.
Many Canadian Lyme patients come to the U.S. for treatment. There is an excellent LLMD in Plattsburg, New York if you're willing to travel.
I will p.m. the name to you.
Posted by TF (Member # 14183) on :
Yes, I highly recommend the lyme doctor in Plattsburgh, NY. She is a Canadian and has set up her office in the U.S. specifically to treat the undertreated lyme patients in Canada.
She gets people well. She follows the Burrascano Lyme Treatment Guidelines found here:
Read and STUDY this document to get your education on lyme disease and its coinfections.
There are many, many things that the patient can/must do to get well. You will see them all in Burrascano.
For example, the one continuous hour of weightlifting every other day. Once you start treatment, you must begin trying to do this.
Also, the supplements that are needed by lyme patients.
And, once you are on good treatment, you will need to follow Burrascano's anti-yeast diet so that you do not get thrush in your mouth, stomach, etc.
Last I heard, it was a 3 month wait to get in with the Plattsburgh doctor. That is typical for a good lyme doctor. Waits are often much longer than that, so call soon.
And, ask to be put on a cancellation list so that if someone cancels their appointment, they will call you to come in instead.
Welcome to LymeNet! We will help you here all we can.
Posted by Saintsgomarchingin (Member # 51042) on :
Thank you both so much! I shall follow up; finally getting my courage back up to pursue a diagnosis again after so many shut doors (and more than a few nasty specialists' lack of bedside manners after negative test results). 'Bon courage' to you all. Fight the good fight.
Posted by Tincup (Member # 5829) on :
Hey saints!
If you go to www.MarylandLyme.org and look at the menu to your left you will see "DOCTOR REFERRALS".
Click there to find the names and contact information for health care professionals treating Lyme & TBD's in your country (or any state in the US).
There is also a page with support group information, one for alternative medical professionals, educational conferences across the country, labs and their contact information, one for mental health providers, MTHFR and Morgellons providers.
There is also a list of TBD with how to diagnose (testing), a list of symptoms for each disease and treatment info with links to the treatment guidelines.