Hi, I'm researching for my adult son who has fibromyalgia but has also been told he likely has chronic lyme as well.
Thank you Billie
Posted by hopingandpraying (Member # 9256) on :
Welcome to Lymenet! PM sent for OH.
Your son needs to be evaluated and treated by a Lyme-literate doctor (LLMD). Non LLMDs have no clue about this horrible disease or its complex treatment!
A LLMD is one who has treated Lyme disease and the co-infections which come with it for many years and has gotten patients well. A good one will follow Dr. B's Guidelines, the "gold standard" for Lyme treatment.
Unfortunately, LLMDs are far and few between. Your son needs to go where they are. At least half of all Lyme patients travel out-of-state for proper care.
Also most LLMDs do not accept insurance due to the politics surrounding this horrible disease. Read poster TF's explanation, "Why Lyme Doctors Don't Take Insurance":
Read the books written by the top LLMD, Dr. H, titled, "Why Can't I Get Better?" and "How Can I Get Better?". They are an excellent source of information.
Also read "Cure Unknown" by Pamela Weintraub. View "Under Our Skin" and "Under Our Skin2: Emergence" DVDs. Check your local library or buy them used online.
Posted by Ann-Ohio (Member # 44364) on :