Hi, I have chronic Lyme and also Babesia and Bartonella. I have been on IvIg for peripheral neuropathy, as well as IV and oral anitbiotics. I see a LL Neurologist for my Lyme disease.
I developed fourth nerve palsy which gives me double vision on a lateral gaze. Also Aides pupil (unequal pupils). I have had episodes in the past of right hand weakness and a hypotonic bladder that resolved. I have multiple white matter lesions in my brain.
I would like to be evaluated for MS. Could someone recommend a LL Neurologist in NY or CT?
Thanks for your help, Joan Posted by hopingandpraying (Member # 9256) on :
PM set for NYC.
Posted by Rumigirl (Member # 15091) on :
Uh, oh, MS is considered Lyme and co-infections by most Lyme people. MS meds are immunosuppressive. It sounds like you need more treatment of the infections. Plus, whatever supportive therapies are needed, like adrenal, thyroid, heavy metals, mold, etc.
Posted by Rumigirl (Member # 15091) on :
Does your current LL neurologist suggest that you be evaluated for MS? I didn't mean to imply that you shouldn't be evaluated, it's just that more often than not, it can mean that one needs more, or different, treatment.
Or something needs to be addressed the hasn't been addressed.
But it sounds like your neurological issues are concerning. I relate to that very well!! It's a club no one wants to be in.
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