Is Stony Brook Lyme Clinic a recommended treatment facility? I read on their website that they abide by IDSA guidelines. I'm shocked but wanted to know if anyone has any insight as to their standing as real LLMDs. Thank you.
Posted by hopingandpraying (Member # 9256) on :
Thanks- I did see the info in the link you posted. Stony Brook used to be more progressive many years ago, I was just wondering what happened to them. Recently in fact, in trying to help other people find help, I'm noticing an uptick of GP/ID providers who won't even do basic prophylactic treatment.
While some things have advanced, some things are rolling back into bad and negligent practices. Like in 2004, I went to a prominent HIV/AIDS specialist looking for an answer as to why I was so sick. When I mentioned Lyme, he threw me out of his office saying, "Lyme is in the courts. You probably have AIDS, you should go get tested." That's a direct quote. I feel like these newbies are getting this kind of vibe. It's alarming. Thanks again.
Posted by hopingandpraying (Member # 9256) on :
You're very welcome - glad to help. PM sent for LLMD in NY.
Posted by Grace77 (Member # 39630) on :
Got it. I know about that LLMD. Thanks. Would you happen to know a Lyme-friendly (not LLMD) GP/Internist in NYC? This is the hardest of all to find. Thanks again.
Posted by hopingandpraying (Member # 9256) on :
No I do not. Contact the NYC Lyme Support Group - maybe they would know of someone.
Yes, Grace, from what our local group has ascertained, Stonybrook is NOT good at this point, sadly. I know that their lab used to be considered sort of good, but I wonder now, since the tide seems to have turned. It was never Igenex.
I have a good GP who is not against Lyme. I can't say if he is Lyme friendly per se, but not against it. I could PM you, if you want. He tends to be a bit booked up, but is supportive.
Posted by Grace77 (Member # 39630) on :
Hi Rumigirl- I've also been getting input about Stony Brook from other channels and no one is in favor of them. It's a shame because they are centrally located with great facilities in one of the most endemic areas.
Sure, I'd love a GP recommendation. I'll see if they take insurance and where they are located. You can PM me.