LymeNet Flash: Maybe there is a light at the end of the tunnel

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Posted by cootiegirl (Member # 3216) on :

Well I've been on tinidazole and biaxin for about 4 months, and I'm starting to see glimmers of my old energy. I caution to say glimmers of my old self, because I'll never be (nor do I want to be) the same person. Not that I was a stinker or anything, I just think I've learned some major life lessons being sick,that have made me a better person in some ways. I wish the lessons could have been delivered in a less dramatic fashion, but then again, I may not have learned from it.

I've lost about 12 pounds. Not from the illness but because I am more active. I am moving more, even walking near a normal pace and not tiring. I can go without taking a nap, but I don't push myself and still listen very carefully to my body. I nap when needed. Today was a napping day...

One of the more startling effects is that my body temp is near normal. Early on it was so low you could have chilled butter on me (94!!!)! I'm now staying around 98, which actually feels like a heatwave to me! I am sleeping better and even got some of my old spark back in the romance dept. Thank God for an extremely patient husband.

I even tried an extremely modified, very slow and gentle pilates workout. I have a long way to go in the stretch and tone dept, but baby steps. I felt pretty good after the stretching, but did ultimately end up taking an hour nap later that day LOL! Oh well. I'm gonna keep at it, but again take it very very slowly and build naps into my routine.

In the brain fog dept, I'm still a huge flake. I'm finding it harder and harder to remember taking my meds. I still forget that I turn the stove on. I forget lots.As I'm typing this, I think I wrote a post similar to this awhile ago, but I forget. I still have a hard time reading and comprehending but I'm forcing myself to read simple plot books for the practice.

Like the others have said, there is hope. I am cautiously optimistic that I will keep moving forward. It will be three years this fall that I was diagnosed. In that time I was treated for babesia and bartonella. For the newbies, it is a painfully slow process full of forwards and backwards. I know that I still have a long way to go, but as long as I see improvement, no matter how small, I'm thrilled.

cootiegirl

Posted by Mo (Member # 2863) on :

Coots..

We all know you were and will always be..... a stinker..

Wow..this is really uplifting news. If you feel you've turned a corner, I'm sure you have. Doc J told nme a while back that the "brain stuff" would be the last to go..

But your energy and temps regulating and all is very encouraging, I'd say!

Maybe, too, if you haven't already, looking into coQ10 could help ( so long as you are not on Bsbesia treatment)..I believe it can help with circulation to the brain, as well as your pilates would help that, too..or yoga..

Not that I'm able to do any of these things yet..but..as soon as I am..

I just think you have good instincts, bith reguarding your advancement, and what you are intriducing now with workouts and reading..

Continued progress to you! I know it's been a long road..but so good to see the light at the end..

All the best,
Mo

Posted by aaronkatie on :

CG,

I'm so happy to hear this! What excellent and encouraging news, thanks so much for sharing.

You were more of a stinker before?

Take care and keep us posted!

betsy

Posted by jpoppeck on :

Hey there
I was so happy to read your post....golly - you have just made my day...maybe someday I'll be able to say the same thing about my son in law. WHO IS A STINKER....but said to his wife last night - I've had alot of time to think about how I've behaved....now he didn't go into that in depth...but hopefully we'll see a change...but for you I'M THRILLED

Joan

Posted by Melanie Reber (Member # 3707) on :

Good morning Cootie bug...or is that stink bug?

I still have to smile at your name whenever I remember playing that little game as a child...

I am so pleased about your good news!!! This is just wonderful reading about all that you are trying to do to get better!

Yes, easy does it girl...and DO listen to your body, and take those all important naps when needed!

I can so relate about all of the 'life-lessons' this disease brings with it...and I am happy that you feel that way too. The experience for me has been invaluable...one never truly understands another's suffering until they have experienced it as well.

My cognitive skills have improved so much...but, they still aren't completely back to normal yet...
but, I do believe that some things will just have to come with time, and a bit of retraining. Those buggers love to hide out in our heads where it is difficult to get at them...so, give it time, and don't lose hope!

Do you have a little kitchen timer that you can incorporate into your med routine? I would be completely lost too without using my stove timer to remind me when it is med time. I set it to go off every two hours when I am on the really complicated med days...and set out all of my drugs in the morning to take.

That way, when the timer goes off, I just take the next little pile of drugs, and reset the timer.

By doing this, I can be sure to keep the supplements, pro-biotics, and meds at least two hours apart from each other without having to watch the clock.

You have come such a long way kiddo...keep it up!

Much love, M

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