We are very enthusiastic in our household about this new MP/Benicar program, too. This is the first time ever in all the years of our daughter's almost life-long illness that we've felt so confident about anything in our lives. She's only just completing her third month, and the first few months can be pretty challenging, so this is saying quite a lot.

Following the MP program carefully enough, especially the necessity for strict avoidance of sun exposures and bright lights, is not a cake walk, but it's really worth the bother (most of the time).

I can't begin to tell you how enthusiastic we are about it -- with the exception of a few instances when it hasn't been possible to avoid overdoing, because the payback penalty for even minor indiscretions is enough to make a believer out of anyone.

Here's the link to the new official MP website. (The old MP Yahoo group is now defunct.)

http://www.marshallprotocol.com/

I might also mention that a new FAQ will be ready very soon, which should make it a whole lot easier for everyone -- especially for Board Staff who haven't been able to keep up adequately with the heavy demand for individual requests for help.

That's been about the only frustrating part about the MP website is the fact that folks sometimes have trouble getting their questions answered in a timely fashion. There are simply too many newbies and not enough mentors in this newly formed group yet.

Hopefully, that will all change very soon, as more folks get back on the road to recovery and stop asking so many of the same old questions over and over again and start helping to answer questions for other newbies instead -- the way it is here at LymeNet, which is an older, better established group with lots of experienced "guides" and "mentors" around to greet the newbies.

So, try not to get too upset if you visit us there and can't get the help and attention you deserve right away. Also, please be prepared to take advantage of the materials which are already posted there and remember to look for the new FAQ to be posted very soon. Here's the link to this special introductory section.

http://www.marshallprotocol.com/forum2/

PS - I'm posting this in the General Forum since the Medical Forum is kaput yet again.

PPS - My screen name is the same there as it is here, so you'll be able to recognize me easily. Bye now, see you there soon, I hope.

[This message has been edited by TX Lyme Mom (edited 26 October 2004).]
 

Thanks much for the update. The fact that those physicians with expertise in lyme feel good about this makes me feel good about it, as well.

Any hard statisical data on parameters(blood work, clinical Sx, etc.) strictly w/rt to lyme disease and the use of the MP?
A statistical analysis w/rt lyme and the MP would help us greatly.
Also, gender differences in response might mean something.

Thanks again,

dq

[This message has been edited by DiffyQue (edited 26 October 2004).]
 

Fantastic news for Trevor/MP moderators.

Glad to see a q/a section is being added. Yes, it will help you all greatly plus others directing them to it....like Tincup's wonderful newbie links post!

Betty G., Iowa
 

I just moved (AGAIN), so am in recovery mode, but will be in touch soon.

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Sonoma County Lyme Support
[email protected]