I have experience writing and I made the decision (vow) to move forward and write a book about LD . . . when I'm more able. How many of you would seriously consider contributing a portion of your story to a book, anonymously? IMO, the best avenue for lyme awareness is reading about what others have gone through and how they reached a final diagnosis. It would definitely an opportunity for your voice to be heard, loud and clear. My LLMD already said he would write the forward to my book. This is a serious inquiry.
Thanks!
Posted by AAmeri21 (Member # 5410) on :
I would
------------------ "Walk by Faith, Not by Sight"
Posted by marie (Member # 3980) on :
I would also.
Posted by Kara Tyson (Member # 939) on :
I would.
Posted by arg82 (Member # 161) on :
Count me in!
------------------ ``The best way out is always through.'' -Robert Frost
[This message has been edited by WildCondor (edited 13 January 2005).]
Posted by heartsickmommy (Member # 6417) on :
I'd be willing to contribute our story - a toddler with Lyme. So far, a fairly uncomplicated case which appears at the moment to be headed toward a happy 'ending'.
I don't know if you'll be wanting to include the whole spectrum of Lyme from simpler cases to the more difficult, but if you do, I'd be happy to contribute.
Posted by bg (Member # 46416) on :
Yes, me too; I responded on your original post in medical, but this way all our names are in one post.
Yes, you ARE a very GIFTED writer; made me cry reading of you and your family experiences..uffda, a Norwegian expression!
Betty G.,Iowa
Posted by sapphire101 (Member # 6638) on :
I would love to so count me in, also. Great idea.
Sapphire
Posted by MADDOG (Member # 18) on :
Hi, Should I include how many firehydrants I have nailed. AAAAAOOOOOOOOO! MADDOG
Posted by GEDEN13 (Member # 4151) on :
my address is on here..i well help.got a story.will some fund's help lyme research? keep some for yourself..i know the expence...be well,,,gary
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Posted by robi (Member # 5547) on :
I love to.
robi
Posted by slcd (Member # 5708) on :
Great idea! I'm in! Posted by Biting Back (Member # 6018) on :
I'll keep you all posted and let you know when I get deeper into the planning stages. Currently thinking through the format, but please let me know your thoughts.
I'm trying to brainstorm a title. The title has to peak interest in the so-called CFIDS, fibromyalgia, MS and lupus patients. Just trying to figure out how to get EVERYONE to pick the book up and read it. Hmmmm. What books did I read along the way?
Betty and All:
Will include youngest to oldest; seemingly uncomplicated cases to the very seriously ill.
Ufda, is Norweigan? How 'bout oy, vay? My little Granny used to say that pretty often. Might be a Jewish phrase?
Yes, funds will definitely go to lyme research.
MADDOG, you're a fruit loop! Of course we'll include the hydrants!
Posted by GEDEN13 (Member # 4151) on :
i also have fibro..funny though,same symtom's as lyme.lol..i do have to laugh.but is not funny....gary
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Posted by shazdancer (Member # 1436) on :
Count me in! Posted by LymeLaura (Member # 6624) on :
I'd love to help!
Posted by kam (Member # 3410) on :
I was wondering if you were going to call the book Biting Back when I first saw your post.
I, too, thought I would like to put a book together when I first came down with this.
But, then reality set in and it was not something I have been well enough to do the past 3 years.
So, I would be interested in doing what I can to help you.
Posted by lymebrat (Member # 3208) on :
I would too!
I wrote a poem about my experience with lyme and getting the correct diagnoses and treatment..and the devastation this disease caused me as a person, as well as my husband and children.
I would be honored to share it with others fighting this disease, as I think my poem is something they and their loved ones will be able to relate to..
Good luck in your new project!
~LymeBrat
Posted by DolphinLady (Member # 6275) on :
Great idea, count me in too. -D
Posted by lemonylime (Member # 5615) on :
Definitely! I already wrote my 6 page story for my LLMD! The whole experience gave me an unbelievable urge to express myself! I would love to contribute,, and I was fortunate to have a "happy ending" - I went from walking with difficulty to doing my best time ever in a marathon 10 months after my first abx. I shudder to think what might have happened if I hadn't found this site-which helped me find my doctor! Thanks everyone!
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Posted by hatterasbit (Member # 4573) on :
People {or Dr's} in my neck of the woods don't have a clue! I'd be happy to help spread the word.
Dar
Posted by PinchotGail (Member # 5066) on :
I would love to help by sharing my story as well as the rest of my family.......My husband was diagnosed next followed by our 2 daughters.
Great idea!!
Gail
Posted by giftoflife (Member # 6748) on :
Sounds like a great plan. Count me in. People need to know of this horrific disease and what not only the lyme sufferer but the family goes through.
